Upland about in my beautiful new chair again today, ditched the e-motion power assist wheels and went for the standard manual wheels the chair came with. I pushed 2 laps of the hospital with Mary J (my wheelchair) and I headed back to my room to read and practice wheelies 😉 Physio man came to…Continue reading 17th day in rehab (Walking & shopping)
Today marks week 5 of my 1st ever hospital admission, and since the 1st half of the day was spent doing sod all I thought I’d reflect on a few things. I started this journey thinking I’d be in over night… Just till the diazepam wore off… I was wrong. The last 5 week’s have…Continue reading 15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
Fairly relaxed day today, I had a bit of a layin then got myself up and dressed. Physio man came to see me and I was introduced to the 3rd physio on the team. She seemed a little more hesitant about the EDS risks during physio than the other two but I gave her my…Continue reading 13th day in rehab
Day 1 in rehab. Woken up nice and early to a day with nothing planned. Spent a few hours making bracelets in the conservatory with the doors and Windows open. Then read lots, thank goodness for kindle. Got visited by Mum who bought me decent GF food and took me for a walk/wheel, my 1st…Continue reading 1st day of rehab
So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review
Mother and I went camping 😀 1st time in ages and I loved it!. We were staying at Nantcol Waterfalls Campsite https://nantcolwaterfalls.co.uk/ Well the site was beautiful and in a lovely location, the pitches were level with good grass and a fire pit, not too terrible for wheelchair access either! the disabled loo / washroom was great…Continue reading Nantcol Waterfalls camping Trip
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!