I had a layin of a whole half an hour this morning before scrambled egg on toast and getting up and dressed. My back is definitely a lot better when I take diazepam at night so I think I might stick with that for a while. I spent most of the morning reading in bed…Continue reading 21st day in rehab (sneaky visit home to watch Grey's Anatomy, the GF Easter bunny)
Tag: Syndrome
20th day in rehab (beads, discharge planning and walking lots)
Survived the night flat much better having taken diazepam before bed so I’ll be trialling that again tonight. I’ve still go lots of orders to complete for the hospital staff so I got dressed and started beading early. I made myself a bracelet to go with my cotton cord necklace from yesterday I’d just finished…Continue reading 20th day in rehab (beads, discharge planning and walking lots)
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19th day in rehab (pain pain go away, pretty things are here to stay)
Bad pain day today .. In preparation for my discharge I’m trying to wean myself off the profiling bed so last night I tried to sleep laid flat down with just pillows for support. Well it’s not good I’m in a lot of pain, my hips and back particularly are really sore. That deep down…Continue reading 19th day in rehab (pain pain go away, pretty things are here to stay)
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17th day in rehab (Walking & shopping)
Upland about in my beautiful new chair again today, ditched the e-motion power assist wheels and went for the standard manual wheels the chair came with. I pushed 2 laps of the hospital with Mary J (my wheelchair) and I headed back to my room to read and practice wheelies 😉 Physio man came to…Continue reading 17th day in rehab (Walking & shopping)
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15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
Today marks week 5 of my 1st ever hospital admission, and since the 1st half of the day was spent doing sod all I thought I’d reflect on a few things. I started this journey thinking I’d be in over night…Â Just till the diazepam wore off… I was wrong. The last 5 week’s have…Continue reading 15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
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14th day in rehab (race horses, the great escape and beading)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
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1st day of rehab
Day 1 in rehab. Woken up nice and early to a day with nothing planned. Spent a few hours making bracelets in the conservatory with the doors and Windows open. Then read lots, thank goodness for kindle. Got visited by Mum who bought me decent GF food and took me for a walk/wheel, my 1st…Continue reading 1st day of rehab
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May is Ehlers Danlos Syndrome Awareness Month!
I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!
