Pain management is a complex and lifelong challenge for many people. The most obvious answer to the pain problem is painkillers right? Pain meds often come with some nasty side effects and can be highly addictive. I’m not saying pain killers are all bad (they aren’t) and I’m not saying everyone who uses them will…Continue reading Pain Management, it’s not always about pills.
Category: Everyday Aids & Lifestyle Adaptations
Everyday Aids & LifestyleAdaptations to help manage chronic illnesses and variable disabilities.
Surviving a General Anaesthetic with H-EDS & PoTS
So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS
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Life with an Un-cooperative Body
A quick post on what its like living with an un-cooperative body and the challenges of invisible disabilities. Set during one day at university.
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Reflections on ‘Life and Limb’ – Aceptance & Emotional Rollercoasters
As many of my regular readers will know I am currently training as an Occupational Therapist, as part of our final year my class mates and I are undertaking specialist workshops. We were recommended to pick something of interest, something we don’t know a lot about and something that we don’t have too strong an…Continue reading Reflections on ‘Life and Limb’ – Aceptance & Emotional Rollercoasters
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An alternative approach to Physiotherapy
For many people around the world, regular physiotherapy is an accepted part of life. This doesn’t just go for chronic illnesses or long-term disabilities either. Plenty of people get short-term physio for acute injuries or a little physio input as they get older and less mobile. Simply needing physiotherapy doesn’t mean you’ll find it easy…Continue reading An alternative approach to Physiotherapy
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Adapted Textbook Exchange – Blind / Visually Impaired – Braille / Large Print
Please check out this new facebook group, its been set up by a friend of mine to help re-home adapted textbooks. VI Adapted Textbooks “This group is specifically for visually impaired young people/parents to give and receive VI adapted school textbooks (Braille, Large Print, etc). I have a reasonable number of large print textbooks thanks…Continue reading Adapted Textbook Exchange – Blind / Visually Impaired – Braille / Large Print
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Exercise with a Chronic Illness or Variable Disability.
I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.
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Flexivity (SudoGrip) Walking Stick Handle Cover
For many people the balance between style and function is a difficult one. I know I should be using walking sticks with ergonomic grips but I also really wanted one with flames around the bottom (just like Dr House). This is the perfect compromise.
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Relationships, chronic illness & intimacy.
This one is a requested post and the first time I’ve co-written a post! Since this post is about maintaining healthy relationships I’ve invited my partner to share his side of the story too. I will apologise now for elevated levels of sarcasm and any unnecessary use of puns featured in this blog post. Just…Continue reading Relationships, chronic illness & intimacy.
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Temperature Regulation Hints and Tips
Introduction Temperature Regulation is supposed to happen naturally. Unfortunately, many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and…Continue reading Temperature Regulation Hints and Tips
