Queer & Neurodivergent: Let’s Talk! Welcome to a wordy blog about “things that makes life wild and wonderful but also really really hard”: Being LGBTQIA+ and neurodivergent or what I like to say ‘neurospicy’. For people who are both LGBTQIA+ and neurodivergent (think: ADHD, Autism or somewhere fabulously off the neurotypical map) everyday can feel…Continue reading The Mental Health Maze of Neurodivergent LGBTQIA+ People
Category: Health & Disability. EDS & PoTS
JBOT Podcast with Jordan. Episode 1
Welcome to the JBOT Podcast with Jordan. In this episode Jordan & Matt catch up with Steve Dent. Owner of disability equipment retailer www.spokz.co.uk . Steve shares how his own experience of disability lead to him including sex aids as part of his core range of stock. We also have Matts Myths, tips… and more!…Continue reading JBOT Podcast with Jordan. Episode 1
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Postural Orthostatic Tachycardia Syndrome: is exercise ‘Hair of the dog’ therapy?
Hello everyone. Derek the student physiotherapist here. I’m near the end of my placement now. I’ve made a little presentation about Postural Orthostatic Tachycardia Syndrome or (PoTS). I know this is a common condition among the EDS and HSD community. As a physiotherapist I am fascinated how exercise and physical activity can be the cause,…Continue reading Postural Orthostatic Tachycardia Syndrome: is exercise ‘Hair of the dog’ therapy?
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Balance & Perception – Long Cane Training.
Many regular visitors to this site (and most of my friends) will be aware that I live with Visual Stress. For the most part it just means I wear snazzy orange glasses and can’t drive. Other less obvious elements are my lack of depth perception, terrible night vision and sensitivity to blue light. I used…Continue reading Balance & Perception – Long Cane Training.
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HMSA EDS UK Management & Wellbeing Conference 2017
My presentation on Occupational Therapy from the HMSA EDS UK Management & Wellbeing Conference 2017. JBOT
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Misplaced Inspiration – Being Healthy is HARD
I often discuss the ‘disabled people are inspirational’ issue with friends and family. ‘Inspiration P0rn’. I am often told I’m inspirational, some times I smile and say thank you while rolling my eyes, sometimes I challenge the person in question and at other times I take it as a compliment. I could lecture about this…Continue reading Misplaced Inspiration – Being Healthy is HARD
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Self-Care isn’t Self-Indulgent
In my work as an OT and in my life in general I often come across phrases that make me sad. I have lost count of the times I’ve heard ‘I don’t have time to pace’. This phrase is usually followed by a list of things the person does for others… I often have to…Continue reading Self-Care isn’t Self-Indulgent
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Dr Google & The e-Patient Experince
In this online age, access to medical information is faster and simpler than ever before. The ease with which patients can search for symptoms, diagnoses and treatments has plays a big role in the the e-patient 1 movement. About 5% of all internet searches are about medical information 2 . Support groups, patient advocacy groups…Continue reading Dr Google & The e-Patient Experince
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Physiotherapy Expectations With Hypermobility Syndromes
Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes
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‘Male’ Contraceptive Trial – The truth about owning a uterus.
Please excuse the overly simplified gender discussion in parts of this post. I always do my best to use gender neutral language in all posts but for the sake of clarity here I have made a few exceptions. If you’ve been anywhere on social media this week you will probably have seen an article on…Continue reading ‘Male’ Contraceptive Trial – The truth about owning a uterus.
