Many regular visitors to this site (and most of my friends) will be aware that I live with Visual Stress. For the most part it just means I wear snazzy orange glasses and can’t drive. Other less obvious elements are my lack of depth perception, terrible night vision and sensitivity to blue light. I used…Continue reading Balance & Perception – Long Cane Training.
My presentation on Occupational Therapy from the HMSA EDS UK Management & Wellbeing Conference 2017. JBOT
I often discuss the ‘disabled people are inspirational’ issue with friends and family. ‘Inspiration P0rn’. I am often told I’m inspirational, some times I smile and say thank you while rolling my eyes, sometimes I challenge the person in question and at other times I take it as a compliment. I could lecture about this…Continue reading Misplaced Inspiration – Being Healthy is HARD
In my work as an OT and in my life in general I often come across phrases that make me sad. I have lost count of the times I’ve heard ‘I don’t have time to pace’. This phrase is usually followed by a list of things the person does for others… I often have to…Continue reading Self-Care isn’t Self-Indulgent
In this online age, access to medical information is faster and simpler than ever before. The ease with which patients can search for symptoms, diagnoses and treatments has plays a big role in the the e-patient 1 movement. About 5% of all internet searches are about medical information 2 . Support groups, patient advocacy groups…Continue reading Dr Google & The e-Patient Experince
Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes
Please excuse the overly simplified gender discussion in parts of this post. I always do my best to use gender neutral language in all posts but for the sake of clarity here I have made a few exceptions. If you’ve been anywhere on social media this week you will probably have seen an article on…Continue reading ‘Male’ Contraceptive Trial – The truth about owning a uterus.
“The Able Label provides quality, stylish clothes with adapted designs and hidden extras that make self-dressing easier for those with dressing difficulties.” The Able Label is a stylish and comfy adaptive clothing range, I’m proud to announce my affiliation with them. Their items feature a number of accessibility features. To start with, no…Continue reading The Able Label – Adaptive Clothing
It’s that time of year again, May is EDS Awareness Month. For the whole of May I’ll be raising awareness of Ehlers Danlos Syndromes. For those of you who don’t know what it is please head on over to my EDS info page. For the last few years I’ve offered to share info on any…Continue reading EDS Awareness Month – Open questions, ask me anything! #EDSAwarenessMonth
Earlier today I was watching the London Marathon. The commentator repeatedly emphasised that ‘anyone can run the London Marathon’ all you need is ‘enough training and enough belief’. I let this sink in for a bit and decided that I couldn’t stay quiet. I was encouraged by a friend to share what I thought. What absolute…Continue reading Ableism in the media ‘Anyone can run a marathon’