Surviving a General Anaesthetic with H-EDS & PoTS

So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS

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The Rehab Saga – Guide page.

This series of blog posts will follow my 3 weeks at Stanmore hospital (RNOH). I’m going through the Hypermobility Rehab Programme in an attempt to learn how to manage my physical health problems, to get a bit fitter and to take a good look at the way I cope with things emotionally/psychologically. There are two…Continue reading The Rehab Saga – Guide page.

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The Rehab Saga: Goal Setting, Red Hot Chilli Pepper (Capsaicin) and Swimming

So I’m getting really close to complete my rehab stay and today was mostly about rounding up the programme and making sure I’m as prepared as possible before going out into the wide world to continue my life. I overslept this morning (I’m blaming the antihistamines) but I did get up early enough to go…Continue reading The Rehab Saga: Goal Setting, Red Hot Chilli Pepper (Capsaicin) and Swimming

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The Rehab Saga: Physio, friends, family and beer pong.

After struggling to wake up yesterday I was expecting to really struggle this morning, I was pleasantly surprised when I woke up at 7:15 and didn’t feel half bad! I hopped in the shower (and even washed my hair) before grabbing breakfast there were a couple of new faces on the ward this morning so…Continue reading The Rehab Saga: Physio, friends, family and beer pong.

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The Rehab Saga: Maintaining change, Physio/OT and a visit from Addz

Up bright and early this morning but I felt pretty sleepy (I’m blaming the added antihistamines) I did eventually drag myself out of bed and get dressed in time for the Stretch class. It was a pretty small group of us today so we chatted a bit but got the job done, the Therapy techs…Continue reading The Rehab Saga: Maintaining change, Physio/OT and a visit from Addz

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The Rehab Saga: weekend recap and balance training

This is the start of my last week its also the last of my 5:30am starts! The drive up took an hour longer than normal this morning so I was feeling pretty rubbish by the time we finally arrive, (kinda desperate for the loo too!) My first order of business after un-pacing was to request…Continue reading The Rehab Saga: weekend recap and balance training

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