Something a little different for this blog post. I recently had the pleasure of working with Shona of My Marfan Life. Here, she share’s her experiences working with me and a bit about her life with Marfan Syndrome. “Recently I had the pleasure of having a 30 minute consultation with Jo to create a flare up…Continue reading Flare Up Planning with Shona
“Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity” (World Health Organization) We all have ‘Mental Health’, it is literally impossible to be ‘healthy’ without looking after your mental health as well as your physical health. Health of all kinds is on a spectrum,…Continue reading World Mental Health Day – ‘Health’ & Individuality
I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.
Temperature Regulation is supposed to happen naturally. Unfortunately many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and experience a…Continue reading Temperature Regulation Hints and Tips
So after I finished my blog post yesterday I was planning on having an early night. That didn’t happen. I layed down for a while and read my kindle (no hope of sleeping with the lights on and everyone talking) I’ve been struggling to sleep here anyway so I was easily irritated by lights or…Continue reading The Rehab Saga: Weekend Goals, Nutrition and extra Physio.
It was all fun and games on the ward last night, we had a power cut just before 10pm…the emergency lighting came on in the ward but not in the bathrooms so I got ready for bed in the dark using my phone as a torch! The emergency lighting was stuck on until the power…Continue reading The Rehab Saga: Jam Packed & Working hard!
First day back after the weekend and up bright and early this morning. Everyone loves a 5:30am start right? … Our first session of the day was a review of our weekends. We took it in turn to discuss the progress we’d made with our goals and what we got up to at the weekend.…Continue reading The Rehab Saga: The Beginning of Week 2