Travel with a variable health condition

Planning a holiday or a day out should be exciting but for many people with variable illnesses or disabilities it can be pretty daunting. To be honest, planning anything can be pretty daunting. I’ve lost count of the number of events I’ve called off at the last-minute.  For any new visitors to my blog, I…Continue reading Travel with a variable health condition

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Hypermobility Syndromes – When to seek medical help?

Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point.  That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?

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Therapeutic Relationships

Therapeutic Relationships – Getting the most from Healthcare

I’m often asked how I’ve managed to get the most out of healthcare appointments, there is no quick answer so I’ve decided to write a longer one. As always, this post is written from the dual perspective of expert patient and healthcare professional. Much of this post is written from my own personal experience. During…Continue reading Therapeutic Relationships – Getting the most from Healthcare

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