Introduction Temperature Regulation is supposed to happen naturally. Unfortunately, many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and…Continue reading Temperature Regulation Hints and Tips
Category: Coping Strategies
Tinted Lenses – Visual Stress, Migraines and more
I’ve been wearing tinted glasses since I was 12 years old. I started out with dark green but very quickly moved to orange. I’ve had a fair few pairs of orange tints. I’m used to them, I think I look a little odd without tinted glasses now! I just see them as part of myself…Continue reading Tinted Lenses – Visual Stress, Migraines and more
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Pacing – when is the Boom worth the Bust?
Symptom management is a really important part of living well with a chronic health condition. For symptoms like fatigue and pain, Pacing is an essential skill to learn. There is no easy fix for long-term health conditions but there are a lot of little fixes that can help. To make the most of these little…Continue reading Pacing – when is the Boom worth the Bust?
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When is the right time to use mobility aids?
This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?
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Diagnosis pro’s and con’s
I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s
