Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes
Life can be tough. Sometimes people with disabilities/impairments have to make tough choices and the impact of society can make tough choices even tougher. Using mobility aids, pacing and pain management strategies often come with judgments and assumptions attached. Over the last few years, I’ve learnt a lot about myself and I feel like I’ve…Continue reading Disability life lessons – Who cares what society thinks?
As part of Occupational Therapy degrees each student must complete one thousand hours of practice. How this is divided up varies from place to place. Northampton University divides practice hours into three placements. The first is shortest and is mainly observation. The last placement is the longest and it’s expected that each student will carry…Continue reading Limitless Travel role-emerging placement
Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point. That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?
I’m often asked how I’ve managed to get the most out of healthcare appointments, there is no quick answer so I’ve decided to write a longer one. As always, this post is written from the dual perspective of expert patient and healthcare professional. Much of this post is written from my own personal experience. During…Continue reading Therapeutic Relationships – Getting the most from Healthcare
It’s not often I write about how much disability can suck. I do my very best to stay positive. I write useful posts with coping strategies. I think I do a pretty good job when it comes to living a fun and meaningful life but there are some times when I genuinely feel like my…Continue reading Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability
Today I’m sharing a selfie to support all the NHS staff against healthcare reforms. The first photo is me in resus at Worcester Royal Hospital. I was admitted with tachycardia, dehydration and mystery neurological symptoms including muscle spasms that left me with most of my joints dislocated. It took me 6 weeks across 3 different…Continue reading #NHSselfie #SaveOurNHS #NotSafeNotFair
So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS
A quick post on what its like living with an un-cooperative body and the challenges of invisible disabilities. Set during one day at university.
As many of my regular readers will know I am currently training as an Occupational Therapist, as part of our final year my class mates and I are undertaking specialist workshops. We were recommended to pick something of interest, something we don’t know a lot about and something that we don’t have too strong an…Continue reading Reflections on ‘Life and Limb’ – Aceptance & Emotional Rollercoasters