May is Ehlers Danlos Syndrome Awareness Month!

I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!

May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome

EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome