Hypermobility Syndromes – When to seek medical help?

Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point.  That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?

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Pain Management

Pain Management, it’s not always about pills.

Pain management is a complex and lifelong challenge for many people. The most obvious answer to the pain problem is painkillers right? Pain meds often come with some nasty side effects and can be highly addictive. I’m not saying pain killers are all bad (they aren’t) and I’m not saying everyone who uses them will…Continue reading Pain Management, it’s not always about pills.

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Pacing

Pacing – when is the Boom worth the Bust?

Symptom management is a really important part of living well with a chronic health condition. For symptoms like fatigue and pain, Pacing is an essential skill to learn 1 . There is no easy fix for life with long-term health conditions but there are a lot of little fixes that can help. To make the most…Continue reading Pacing – when is the Boom worth the Bust?

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The Rehab Saga – Guide page.

This series of blog posts will follow my 3 weeks at Stanmore hospital (RNOH). I’m going through the Hypermobility Rehab Programme in an attempt to learn how to manage my physical health problems, to get a bit fitter and to take a good look at the way I cope with things emotionally/psychologically. There are two…Continue reading The Rehab Saga – Guide page.

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The Rehab Saga: Maintaining change, Physio/OT and a visit from Addz

Up bright and early this morning but I felt pretty sleepy (I’m blaming the added antihistamines) I did eventually drag myself out of bed and get dressed in time for the Stretch class. It was a pretty small group of us today so we chatted a bit but got the job done, the Therapy techs…Continue reading The Rehab Saga: Maintaining change, Physio/OT and a visit from Addz

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The Rehab Saga: first full day and awesome physio!

Today was my first full day on the ward. After a slightly uncomfortable nights sleep I got myself up and dressed. Breakfast was a total failure. The GF bread was full of poppy seeds and I’m allergic. They’d run out of soya milk so my breakfast options were dry cornflakes or a banana…I went for…Continue reading The Rehab Saga: first full day and awesome physio!

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