Adapted Textbook Exchange – Blind / Visually Impaired – Braille / Large Print

Please check out this new facebook group, its been set up by a friend of mine to help re-home adapted textbooks. VI Adapted Textbooks “This group is specifically for visually impaired young people/parents to give and receive VI adapted school textbooks (Braille, Large Print, etc). I have a reasonable number of large print textbooks thanks…Continue reading Adapted Textbook Exchange – Blind / Visually Impaired – Braille / Large Print

Exercise

Exercise with a Chronic Illness or Variable Disability.

I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.

Relationships, chronic illness & intimacy.

This one is a requested post and the first time I’ve co-written a post! Since this post is about maintaining healthy relationships I’ve invited my partner to share his side of the story too. I will apologise now for elevated levels of sarcasm and any unnecessary use of puns featured in this blog post. Just…Continue reading Relationships, chronic illness & intimacy.

Temperature Regulation

Temperature Regulation Hints and Tips

Introduction Temperature Regulation is supposed to happen naturally. Unfortunately, many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and…Continue reading Temperature Regulation Hints and Tips

Types of Splinting and Bracing for Hypermobility Syndromes.

There are many different types of splints for different uses. When deciding what will suit you there are lots of  points to consider. So here goes, my run down on different methods of supporting your joints. Neoprene or  Elastic Supports These are often fairly basic lightly shaped stretchy sleeves you simply pull on, commonly available for…Continue reading Types of Splinting and Bracing for Hypermobility Syndromes.

DisabilOT – OTs with disabilities

I’ve made a big effort to engage with the online OT community and I have to say I’m loving it. Tweet chats like #OTalk and the up and coming #WeAHPs are making it much easier to connect with likeminded people across the world. Social media is making the world a more accessible place and I…Continue reading DisabilOT – OTs with disabilities

Tinted Lenses – Visual Stress, Migraines and more

I’ve been wearing tinted glasses since I was 12 years old. I started out with dark green but very quickly moved to orange. I’ve had a fair few pairs of orange tints. I’m used to them, I think I look a little odd without tinted glasses now! I just see them as part of myself…Continue reading Tinted Lenses – Visual Stress, Migraines and more