Hello folks, This post will be a quick review of a boat trip I went on last week. Mum, Granny & I were spending the week in Norfolk and stumbled across a man called Ross with a boat full of birds. Ross’ Wildlife Boat Trips is a one man wildlife tour out of Horsey Mere on…Continue reading Ross’ Wildlife Boat Trips
Relationships, chronic illness & intimacy.
This one is a requested post and the first time I’ve co-written a post! Since this post is about maintaining healthy relationships I’ve invited my partner to share his side of the story too. I will apologise now for elevated levels of sarcasm and any unnecessary use of puns featured in this blog post. Just…Continue reading Relationships, chronic illness & intimacy.
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Temperature Regulation Hints and Tips
Introduction Temperature Regulation is supposed to happen naturally. Unfortunately, many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and…Continue reading Temperature Regulation Hints and Tips
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Types of Splinting and Bracing for Hypermobility Syndromes.
There are many different types of splints for different uses. When deciding what will suit you there are lots of points to consider. So here goes, my run down on different methods of supporting your joints. Neoprene or Elastic Supports These are often fairly basic lightly shaped stretchy sleeves you simply pull on, commonly available for…Continue reading Types of Splinting and Bracing for Hypermobility Syndromes.
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Yoga with Hypermobility Syndromes – Safe Stretching
Please remember throughout this post, I am not a yoga instructor, I am not a physiotherapist. This is all info I’ve learned through personal experiences with yoga and Ehlers Danlos. I recommend checking with your Dr or physio if you’re unsure about anything.
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DisabilOT – OTs with disabilities
I’ve made a big effort to engage with the online OT community and I have to say I’m loving it. Tweet chats like #OTalk and the up and coming #WeAHPs are making it much easier to connect with likeminded people across the world. Social media is making the world a more accessible place and I…Continue reading DisabilOT – OTs with disabilities
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Tinted Lenses – Visual Stress, Migraines and more
I’ve been wearing tinted glasses since I was 12 years old. I started out with dark green but very quickly moved to orange. I’ve had a fair few pairs of orange tints. I’m used to them, I think I look a little odd without tinted glasses now! I just see them as part of myself…Continue reading Tinted Lenses – Visual Stress, Migraines and more
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Pacing – when is the Boom worth the Bust?
Symptom management is a really important part of living well with a chronic health condition. For symptoms like fatigue and pain, Pacing is an essential skill to learn. There is no easy fix for long-term health conditions but there are a lot of little fixes that can help. To make the most of these little…Continue reading Pacing – when is the Boom worth the Bust?
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The Rehab Saga: Goal Setting, Red Hot Chilli Pepper (Capsaicin) and Swimming
So I’m getting really close to complete my rehab stay and today was mostly about rounding up the programme and making sure I’m as prepared as possible before going out into the wide world to continue my life. I overslept this morning (I’m blaming the antihistamines) but I did get up early enough to go…Continue reading The Rehab Saga: Goal Setting, Red Hot Chilli Pepper (Capsaicin) and Swimming
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The Rehab Saga: Physio, friends, family and beer pong.
After struggling to wake up yesterday I was expecting to really struggle this morning, I was pleasantly surprised when I woke up at 7:15 and didn’t feel half bad! I hopped in the shower (and even washed my hair) before grabbing breakfast there were a couple of new faces on the ward this morning so…Continue reading The Rehab Saga: Physio, friends, family and beer pong.
