Day 3. Beautiful weather once again, the sunshine floods in through my bedroom window all morning. Started the day with bed based physio then taped my knees and ankles up afterwards. After being productive for a while I decided I’d earnt a treat so I finally sat down for a proper manicure (1st time in…Continue reading 3rd day in Rehab
Category: Health & Disability. EDS & PoTS
2nd day in rehab
Today was day 2 of rehab and my 1st time meeting my physio and OT for my stay. I was again up nice and early with toast and jam. The physiotherapist and Occupational therapist came to see me briefly before lunch, but by the time I was done catching them up with my previous function,…Continue reading 2nd day in rehab
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Phase Change Cooling Vest Review
So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review
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EDS Awareness Month Continued!
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!
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May is Ehlers Danlos Syndrome Awareness Month!
I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!
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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
