Tag: chronic illness

Understanding an inherited blood disorder: Thalassaemia . Written in red over 3 male doctors looking at an x-ray.

Understanding an inherited blood disorder: Thalassaemia 

Student PlacementHealth & Disability. EDS & PoTS

This episode 2 of this blog follows on from Episode 1 on sickle cell. Sickle cell and thalassaemia have similar characteristic on individuals’ health and similar pain management with occupational therapy perspective.   Thalassaemia awareness is important because it is one of the most common inherited haemoglobin disorders worldwide. It represents a significant, yet often under‑recognised, global health burden. More than 1 million people…Continue reading Understanding an inherited blood disorder: Thalassaemia 

Understanding inherited blood disorders: Sickle cell disease written in red over a faded image of two women doing lab research at a laptop.

Understanding inherited blood disorders: Sickle Cell Disease  (Post 1) 

Student PlacementOccupational Therapy

This 1st series blog will be followed by thalassaemia in series 2 and their link to occupational therapy. This blog came about sickle cell and thalassaemia are not well talked about and their characteristics can easily be mistaken for extreme exhaustion or laziness to name a few  I have decided to write about sickle cell because it has been a personal challenge, and despite its prevalence, it does not receive…Continue reading Understanding inherited blood disorders: Sickle Cell Disease  (Post 1) 

A checklist next to a half packed suitcase with some pain management tools like topical creams, pillows and aids.

Travelling with a Hypermobility Syndrome 

Student PlacementAids & Equipment

Travel and days out are meant to be enjoyable — a break from routine, a chance to explore, connect, and rest. But for people living with a hypermobility syndrome, travel can feel overwhelming before it’s even begun. Pain, fatigue, joint instability, and unpredictable symptoms can turn what should be a positive experience into a source of anxiety. …Continue reading Travelling with a Hypermobility Syndrome 

Self-advocacy in healthcare written in white over two people having a conversation over some notes

Self-advocacy in healthcare

Student PlacementCoping Strategies

Hi, I’m Emilia, a BSc Occupational Therapy student currently on placement with JB Occupational Therapy. I also have many years of lived experience of being chronically ill. I wanted to write a blog post about self-advocacy, as I have consistently found within my own experiences and on this placement the importance of being able to…Continue reading Self-advocacy in healthcare

Celebrating Disability Pride Month

JBOTOccupational Therapy

JB Occupational Therapy Recognises Disability Pride Month What is Disability Pride? It’s not about being proud of pain, it’s about being proud of surviving, adapting, and refusing to shrink yourself in a world that wasn’t built with you in mind. “Disability is natural. It’s part of diversity. It’s part of the human condition” Judy Heumann…Continue reading Celebrating Disability Pride Month

Enabling participation through positive risk: An OT approach to chronic illness written over a group of people undertaking an exercise class. One uses a cane and another is in a wheelchair.

Enabling Participation through positive risk: An OT Approach to Chronic Illness

Student PlacementOccupational Therapy

Hey everyone, my name is Tegan and I’m currently on a placement with JBOT. I’m studying an MSc apprenticeship in Occupational Therapy. This is my final placement out of three. My first being in adult social care, and my second being in an inpatient intensive care mental health hospital. During my time as a student,…Continue reading Enabling Participation through positive risk: An OT Approach to Chronic Illness

Fatigue is more than feeling tired: Confronting chronic fatigue and chron's disease through an occupational therapy lens written over an image of a lady reclining in bed. She has a hand to her forehead and looks tired and is wearing a hijab

Fatigue Is More Than Feeling Tired: Confronting Chronic Fatigue and Crohn’s Disease Through an Occupational Therapy Lens

Student PlacementOccupational Therapy

By Nima – MSc Occupational Therapy Student (JB Occupational Therapy) I’m Nima, an MSc Occupational Therapy student currently on placement with JB Occupational Therapy. Throughout this placement, I’ve been exploring the lived experiences of people managing chronic illnesses, with a particular focus on how invisible symptoms affect daily life, identity, and occupation. This blog continues…Continue reading Fatigue Is More Than Feeling Tired: Confronting Chronic Fatigue and Crohn’s Disease Through an Occupational Therapy Lens

The mental health maze of neurodivergent LGBTQ+ people written over a watercolour wash background with hands holding and a small heart

The Mental Health Maze of Neurodivergent LGBTQIA+ People 

Student PlacementHealth & Disability. EDS & PoTS

Queer & Neurodivergent: Let’s Talk!  Welcome to a wordy blog about “things that makes life wild and wonderful but also really really hard”: Being LGBTQIA+ and neurodivergent or what I like to say ‘neurospicy’.   For people who are both LGBTQIA+ and neurodivergent (think: ADHD, Autism or somewhere fabulously off the neurotypical map) everyday can feel…Continue reading The Mental Health Maze of Neurodivergent LGBTQIA+ People 

A faded image of weights, a phone, waterbottle and resistance band on a table. The text over the top reads 'Exercise for hypermobility'

Exercise for Hypermobility

Student PlacementAdaptive Sport & Fitness

Exercise is an activity known to have a positive impact on holistic wellbeing. According to Geneen et al (2017) when living with chronic pain, exercise can reduce pain severity and improve quality of life. Before taking part in exercise there are 4 things to consider: Helpful tips when exercising 1. Reduce range of motion –…Continue reading Exercise for Hypermobility