Hypermobility Syndromes – When to seek medical help?

Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point.  That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?

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Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability

It’s not often I write about how much disability can suck. I do my very best to stay positive. I write useful posts with coping strategies. I think I do a pretty good job when it comes to living a fun and meaningful life but there are some times when I genuinely feel like my…Continue reading Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability

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Pain Management

Pain Management, it’s not always about pills.

Pain management is a complex and lifelong challenge for many people. The most obvious answer to the pain problem is painkillers right? Pain meds often come with some nasty side effects and can be highly addictive. I’m not saying pain killers are all bad (they aren’t) and I’m not saying everyone who uses them will…Continue reading Pain Management, it’s not always about pills.

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#NHSselfie #SaveOurNHS #NotSafeNotFair

Today I’m sharing a selfie to support all the NHS staff against healthcare reforms. The first photo is me in resus at Worcester Royal Hospital. I was admitted with tachycardia, dehydration and mystery neurological symptoms including muscle spasms that left me with most of my joints dislocated. It took me 6 weeks across 3 different…Continue reading #NHSselfie #SaveOurNHS #NotSafeNotFair

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Surviving a General Anaesthetic with H-EDS & PoTS

So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS

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