“The Able Label provides quality, stylish clothes with adapted designs and hidden extras that make self-dressing easier for those with dressing difficulties.” The Able Label is a stylish and comfy adaptive clothing range, I’m proud to announce my affiliation with them. Their items feature a number of accessibility features. To start with, no…Continue reading The Able Label – Adaptive Clothing
Tag: chronic life
Disability life lessons – Who cares what society thinks?
Life can be tough. Sometimes people with disabilities/impairments have to make tough choices and the impact of society can make tough choices even tougher. Using mobility aids, pacing and pain management strategies often come with judgments and assumptions attached. Over the last few years, I’ve learnt a lot about myself and I feel like I’ve…Continue reading Disability life lessons – Who cares what society thinks?
Chronic Pain – What does it actually feel like?
This is something I’ve been meaning to write about for a long time. While doing my dissertation before christmas I repeatedly read that most newly qualified healthcare professionals do not have a modern understanding of pain. I reviewed 9 articles for my dissertation, one common theme was the negative patient experience. Patients not feeling validated,…Continue reading Chronic Pain – What does it actually feel like?
Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability
It’s not often I write about how much disability can suck. I do my very best to stay positive. I write useful posts with coping strategies. I think I do a pretty good job when it comes to living a fun and meaningful life but there are some times when I genuinely feel like my…Continue reading Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability
Introduction to Joint Protection
As usual this post is written from a dual perspective, I’m an Occupational Therapist and I have spent many years learning to manage my own health. With this post I aim to give a few simple ways of looking after your joints during everyday activities, hopefully explained in a simple way. As with all of…Continue reading Introduction to Joint Protection
Pain Management, it’s not always about pills.
Pain management is a complex and lifelong challenge for many people. The most obvious answer to the pain problem is painkillers right? Pain meds often come with some nasty side effects and can be highly addictive. I’m not saying pain killers are all bad (they aren’t) and I’m not saying everyone who uses them will…Continue reading Pain Management, it’s not always about pills.
#NHSselfie #SaveOurNHS #NotSafeNotFair
Today I’m sharing a selfie to support all the NHS staff against healthcare reforms. The first photo is me in resus at Worcester Royal Hospital. I was admitted with tachycardia, dehydration and mystery neurological symptoms including muscle spasms that left me with most of my joints dislocated. It took me 6 weeks across 3 different…Continue reading #NHSselfie #SaveOurNHS #NotSafeNotFair
Surviving a General Anaesthetic with H-EDS & PoTS
So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS
#OTandMe15 Tweet Chat
In honour of UK OT week 2015 I will be hosting the #OTandMe15 Tweet Chat on Wednesday 4th November at 7pm (UTC) Please come along and share your experiences of Occupational Therapy, this chat is open to everyone both patients and professionals. I would love a good mix of people so that we can all learn…Continue reading #OTandMe15 Tweet Chat
Life with an Un-cooperative Body
A quick post on what its like living with an un-cooperative body and the challenges of invisible disabilities. Set during one day at university.