This is the start of my last week its also the last of my 5:30am starts! The drive up took an hour longer than normal this morning so I was feeling pretty rubbish by the time we finally arrive, (kinda desperate for the loo too!) My first order of business after un-pacing was to request…Continue reading The Rehab Saga: weekend recap and balance training
Tag: chronic pain
The Rehab Saga: Weekend Goals, Nutrition and extra Physio.
So after I finished my blog post yesterday I was planning on having an early night. That didn’t happen. I layed down for a while and read my kindle (no hope of sleeping with the lights on and everyone talking) I’ve been struggling to sleep here anyway so I was easily irritated by lights or…Continue reading The Rehab Saga: Weekend Goals, Nutrition and extra Physio.
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The Rehab Saga: Jam Packed & Working hard!
It was all fun and games on the ward last night, we had a power cut just before 10pm…the emergency lighting came on in the ward but not in the bathrooms so I got ready for bed in the dark using my phone as a torch! The emergency lighting was stuck on until the power…Continue reading The Rehab Saga: Jam Packed & Working hard!
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The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.
I’m going to start this post with something from last night. I got chatting with the lovely lady in the bed next to me last night, we got on well so we added each other on facebook. After a little bit of snooping she realised that we actually have 5 friends in common! Not (as…Continue reading The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.
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The Rehab Saga: first full day and awesome physio!
Today was my first full day on the ward. After a slightly uncomfortable nights sleep I got myself up and dressed. Breakfast was a total failure. The GF bread was full of poppy seeds and I’m allergic. They’d run out of soya milk so my breakfast options were dry cornflakes or a banana…I went for…Continue reading The Rehab Saga: first full day and awesome physio!
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When is the right time to use mobility aids?
This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?
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Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
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6th day in rehab
Nice early start this morning with a surprise cooked breakfast! Bacon, mushroom and toast 😀 thank you kitchen lady! Got myself dressed and presentable. Hospital transport arrived just after 9 to take me to orthotics. I arrived early and met Mum for a coffee/cake and a chat about the latest stupid Nigel Farrage related news…Continue reading 6th day in rehab
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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
