The Rehab Saga: Weekend Goals, Nutrition and extra Physio.

So after I finished my blog post yesterday I was planning on having an early night. That didn’t happen. I layed down for a while and read my kindle (no hope of sleeping with the lights on and everyone talking) I’ve been struggling to sleep here anyway so I was easily irritated by lights or…Continue reading The Rehab Saga: Weekend Goals, Nutrition and extra Physio.

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The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.

I’m going to start this post with something from last night. I got chatting with the lovely lady in the bed next to me last night, we got on well so we added each other on facebook. After a little bit of snooping she realised that we actually have 5 friends in common! Not (as…Continue reading The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.

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The Rehab Saga: first full day and awesome physio!

Today was my first full day on the ward. After a slightly uncomfortable nights sleep I got myself up and dressed. Breakfast was a total failure. The GF bread was full of poppy seeds and I’m allergic. They’d run out of soya milk so my breakfast options were dry cornflakes or a banana…I went for…Continue reading The Rehab Saga: first full day and awesome physio!

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Last full day on Skye, Silver stags and Scottage Cheese.

Today was our last full day on Skye… and I spent most of it in bed. After a total sleep fail lastnight I woke up feeling groggy, PoTSy and generally pretty naff. I snuggled up in bed with my kindle and finally dragged myself out of bed after lunch to enjoy the last few daylight…Continue reading Last full day on Skye, Silver stags and Scottage Cheese.

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Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome

EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome

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