Today was my first full day on the ward. After a slightly uncomfortable nights sleep I got myself up and dressed. Breakfast was a total failure. The GF bread was full of poppy seeds and I’m allergic. They’d run out of soya milk so my breakfast options were dry cornflakes or a banana…I went for…Continue reading The Rehab Saga: first full day and awesome physio!
Tag: Disability
When is the right time to use mobility aids?
This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?
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Diagnosis pro’s and con’s
I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s
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Rhizomed Thumb Support from Medi
Ok so I received this awesome new thumb splint this morning and I’ve decided to do a quick review (I couldn’t find any other reviews for this model online so I figured I should write one) Before we get started although I’m an OT student and I splint regularly in my daily life this doesn’t…Continue reading Rhizomed Thumb Support from Medi
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Rehab progress update, Beach Yoga
Today was too hot so we headed to the beach, after a quick visit to granny and a picnic I set about getting a photo of me doing something I’ve been working on for months. After a long hard journey I have finally achieved one of my final goals. I was discharged from Rehab in…Continue reading Rehab progress update, Beach Yoga
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RSPB Minsmere Accessibility Review
RSPB Minsmere is a coastal reserve in Saxmundham, Suffolk. The reserve covers over 2,000 acres and is a mix of woodland, wetland, meadows, reed beds and shorelines. The 1st thing I have to compliment them on is their access statement, their website is FANTASTIC (available here) it covers so much more than just ‘wheelchair accessible…Continue reading RSPB Minsmere Accessibility Review
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14th day in rehab (race horses, the great escape and beading)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
