I had a layin of a whole half an hour this morning before scrambled egg on toast and getting up and dressed. My back is definitely a lot better when I take diazepam at night so I think I might stick with that for a while. I spent most of the morning reading in bed…Continue reading 21st day in rehab (sneaky visit home to watch Grey's Anatomy, the GF Easter bunny)
Tag: EDS
20th day in rehab (beads, discharge planning and walking lots)
Survived the night flat much better having taken diazepam before bed so I’ll be trialling that again tonight. I’ve still go lots of orders to complete for the hospital staff so I got dressed and started beading early. I made myself a bracelet to go with my cotton cord necklace from yesterday I’d just finished…Continue reading 20th day in rehab (beads, discharge planning and walking lots)
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19th day in rehab (pain pain go away, pretty things are here to stay)
Bad pain day today .. In preparation for my discharge I’m trying to wean myself off the profiling bed so last night I tried to sleep laid flat down with just pillows for support. Well it’s not good I’m in a lot of pain, my hips and back particularly are really sore. That deep down…Continue reading 19th day in rehab (pain pain go away, pretty things are here to stay)
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Phase Change Cooling Vest Review
So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review
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EDS Awareness Month Continued!
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!
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May is Ehlers Danlos Syndrome Awareness Month!
I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!
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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
