EDS Awareness Month – Open questions, ask me anything! #EDSAwarenessMonth

It’s that time of year again, May is EDS Awareness Month. For the whole of May I’ll be raising awareness of Ehlers Danlos Syndromes. For those of you who don’t know what it is please head on over to my EDS info page. For the last few years I’ve offered to share info on any…Continue reading EDS Awareness Month – Open questions, ask me anything! #EDSAwarenessMonth

Surviving a General Anaesthetic with H-EDS & PoTS

So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS

Exercise

Exercise with a Chronic Illness or Variable Disability.

I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.

The Rehab Saga: weekend recap and balance training

This is the start of my last week its also the last of my 5:30am starts! The drive up took an hour longer than normal this morning so I was feeling pretty rubbish by the time we finally arrive, (kinda desperate for the loo too!) My first order of business after un-pacing was to request…Continue reading The Rehab Saga: weekend recap and balance training

The Rehab Saga: Jam Packed & Working hard!

It was all fun and games on the ward last night, we had a power cut just before 10pm…the emergency lighting came on in the ward but not in the bathrooms so I got ready for bed in the dark using my phone as a torch! The emergency lighting was stuck on until the power…Continue reading The Rehab Saga: Jam Packed & Working hard!

Skye Holiday, Birds and a Sunset

We’re nearing the end of our holiday and I woke up feeling a bit less PoTSy and a bit less fatigued so we decided to venture out. We stopped at Broadford to visit the shop ‘Love from Skye’ an amazing jeweller (who also sells online) they have some really beautiful stuff and I’m seriously tempted…Continue reading Skye Holiday, Birds and a Sunset

23rd day in rehab and my last full day! (wheelchair drama, walking for miles and surprise visits from friends)

Up bright and early this morning (with both shoulders and a hip out of joint! It’s really hard to pop a hip back in when you can’t feel anything besides pins and needles in either arm!) After yesterday’s emotional meltdown I was up ready for a fight this morning but my morning was a little…Continue reading 23rd day in rehab and my last full day! (wheelchair drama, walking for miles and surprise visits from friends)