A quick post on what its like living with an un-cooperative body and the challenges of invisible disabilities. Set during one day at university.
Tag: ehlers danlos syndrome
Reflections on ‘Life and Limb’ – Aceptance & Emotional Rollercoasters
As many of my regular readers will know I am currently training as an Occupational Therapist, as part of our final year my class mates and I are undertaking specialist workshops. We were recommended to pick something of interest, something we don’t know a lot about and something that we don’t have too strong an…Continue reading Reflections on ‘Life and Limb’ – Aceptance & Emotional Rollercoasters
Share this:
An alternative approach to Physiotherapy
For many people around the world, regular physiotherapy is an accepted part of life. This doesn’t just go for chronic illnesses or long-term disabilities either. Plenty of people get short-term physio for acute injuries or a little physio input as they get older and less mobile. Simply needing physiotherapy doesn’t mean you’ll find it easy…Continue reading An alternative approach to Physiotherapy
Share this:
Exercise with a Chronic Illness or Variable Disability.
I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.
Share this:
Flexivity (SudoGrip) Walking Stick Handle Cover
For many people the balance between style and function is a difficult one. I know I should be using walking sticks with ergonomic grips but I also really wanted one with flames around the bottom (just like Dr House). This is the perfect compromise.
Share this:
Relationships, chronic illness & intimacy.
This one is a requested post and the first time I’ve co-written a post! Since this post is about maintaining healthy relationships I’ve invited my partner to share his side of the story too. I will apologise now for elevated levels of sarcasm and any unnecessary use of puns featured in this blog post. Just…Continue reading Relationships, chronic illness & intimacy.
Share this:
Temperature Regulation Hints and Tips
Temperature Regulation is supposed to happen naturally. Unfortunately many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and experience a…Continue reading Temperature Regulation Hints and Tips
Share this:
Types of Splinting and Bracing for Hypermobility Syndromes.
There are many different types of splints for different uses. When deciding what will suit you there are lots of points to consider. So here goes, my run down on different methods of supporting your joints. Neoprene or Elastic Supports These are often fairly basic lightly shaped stretchy sleeves you simply pull on, commonly available for…Continue reading Types of Splinting and Bracing for Hypermobility Syndromes.
Share this:
Yoga with Hypermobility Syndromes – Safe Stretching
Please remember throughout this post, I am not a yoga instructor, I am not a physiotherapist. This is all info I’ve learned through personal experiences with yoga and Ehlers Danlos. I recommend checking with your Dr or physio if you’re unsure about anything.
Share this:
Tinted Lenses – Visual Stress, Migraines and more
I’ve been wearing tinted glasses since I was 12 years old. I started out with dark green but very quickly moved to orange. I’ve had a fair few pairs of orange tints. I’m used to them, I think I look a little odd without tinted glasses now! I just see them as part of myself…Continue reading Tinted Lenses – Visual Stress, Migraines and more
