What do baby weaning recipes and chronic fatigue have in common? Absolutely nothing. And perhaps I am the first person on the planet to write that sentence? But bear with me…. Background I’m coming towards the end of my last placement of my occupational therapy degree and spending the last 10 weeks with Jo as…Continue reading Chronic fatigue & baby weaning recipes…a match made in heaven?
Tag: fatigue
Fatigue – How can we manage it ourselves?
I’m pretty sure most people reading this will have experienced fatigue of some kind. And I don’t mean the ‘Oh gosh I’m so tired, it’s been such a long day’ kind of fatigue. I mean the ‘I can’t bring myself to get out of bed this morning’ kind of fatigue. I have experienced this kind…Continue reading Fatigue – How can we manage it ourselves?
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Mel’s 5 favourite kitchen gadgets
My 5 favourite kitchen gadgets that might just make life a teeny bit easier! As highlighted in my previous post, we use activity analysis to think about the ways a task could be made easier. A lot of the time, using equipment is the easiest way adapt the way in which a task is done.…Continue reading Mel’s 5 favourite kitchen gadgets
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Flare Up Planning with Shona
Something a little different for this blog post. I recently had the pleasure of working with Shona of My Marfan Life. Here, she share’s her experiences working with me and a bit about her life with Marfan Syndrome. “Recently I had the pleasure of having a 30 minute consultation with Jo to create a flare up…Continue reading Flare Up Planning with Shona
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Ableism in the media ‘Anyone can run a marathon’
Earlier today I was watching the London Marathon. The commentator repeatedly emphasised that ‘anyone can run the London Marathon’ all you need is ‘enough training and enough belief’. I let this sink in for a bit and decided that I couldn’t stay quiet. I was encouraged by a friend to share what I thought. What absolute…Continue reading Ableism in the media ‘Anyone can run a marathon’
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Disability life lessons – Who cares what society thinks?
Life can be tough. Sometimes people with disabilities/impairments have to make tough choices and the impact of society can make tough choices even tougher. Using mobility aids, pacing and pain management strategies often come with judgments and assumptions attached. Over the last few years, I’ve learnt a lot about myself and I feel like I’ve…Continue reading Disability life lessons – Who cares what society thinks?
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Travel with a variable health condition
Planning a holiday or a day out should be exciting but for many people with variable illnesses or disabilities it can be pretty daunting. To be honest, planning anything can be pretty daunting. I’ve lost count of the number of events I’ve called off at the last-minute. For any new visitors to my blog, I…Continue reading Travel with a variable health condition
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Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability
It’s not often I write about how much disability can suck. I do my very best to stay positive. I write useful posts with coping strategies. I think I do a pretty good job when it comes to living a fun and meaningful life but there are some times when I genuinely feel like my…Continue reading Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability
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Surviving a General Anaesthetic with H-EDS & PoTS
So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS
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Life with an Un-cooperative Body
A quick post on what its like living with an un-cooperative body and the challenges of invisible disabilities. Set during one day at university.
