Symptom management is a really important part of living well with a chronic health condition. For symptoms like fatigue and pain, Pacing is an essential skill to learn. There is no easy fix for long-term health conditions but there are a lot of little fixes that can help. To make the most of these little…Continue reading Pacing – when is the Boom worth the Bust?
This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?
We’re nearing the end of our holiday and I woke up feeling a bit less PoTSy and a bit less fatigued so we decided to venture out. We stopped at Broadford to visit the shop ‘Love from Skye’ an amazing jeweller (who also sells online) they have some really beautiful stuff and I’m seriously tempted…Continue reading Skye Holiday, Birds and a Sunset
Beautifully sunny day today but a brisk sea breeze. Up and dressed pretty early and I was laid on a yoga mat ready to watch the marathon. If they can run 26 miles I can do all of my physio! So after an hour or so of intermittent Physiotherapy I got myself back on the…Continue reading 22nd day in rehab (old deer, beads and yet more wheelchair woes and self-indulgent emotional ramblings)
Today marks week 5 of my 1st ever hospital admission, and since the 1st half of the day was spent doing sod all I thought I’d reflect on a few things. I started this journey thinking I’d be in over night… Just till the diazepam wore off… I was wrong. The last 5 week’s have…Continue reading 15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome