Misplaced Inspiration – Being Healthy is HARD

I often discuss the ‘disabled people are inspirational’ issue with friends and family. ‘Inspiration P0rn’. I am often told I’m inspirational, some times I smile and say thank you while rolling my eyes, sometimes I challenge the person in question and at other times I take it as a compliment. I could lecture about this…Continue reading Misplaced Inspiration – Being Healthy is HARD

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Day 22 of #30DaysWild – PoTS (not the plant kind) & Squabbling Starlings.

Today the muggy heat has really finished me off. I’m tachycardic, woozy and my stomach is angrier than normal thanks to my autonomic issues. I’d quite like to curl up in a ball in front of an open fridge and stay there for the whole day. I do struggle with heat intolerance but what really…Continue reading Day 22 of #30DaysWild – PoTS (not the plant kind) & Squabbling Starlings.

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don't confuse your google search with my medical degree

Dr Google & The e-Patient Experince

In this online age, access to medical information is faster and simpler than ever before. The ease with which patients can search for symptoms, diagnoses and treatments has plays a big role in the the e-patient 1 movement. About 5% of all internet searches are about medical information 2 . Support groups, patient advocacy groups…Continue reading Dr Google & The e-Patient Experince

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Physiotherapy expectations with hypermobility syndromes

Physiotherapy Expectations With Hypermobility Syndromes

Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes

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