2020 has definitely been a roller-coaster.. mostly made up of scary downhill parts and sudden drops. For many folks with pre-existing conditions (myself included) the last few months have been downright scary. The lack of information around what actually constituted a risk meant that many people were in a weird no man’s land where they…Continue reading Coronavirus Shielding: Advice for rejoining the world
Top tips for staying happy and healthy during social distancing and self-isolation.
Many regular visitors to this site (and most of my friends) will be aware that I live with Visual Stress. For the most part it just means I wear snazzy orange glasses and can’t drive. Other less obvious elements are my lack of depth perception, terrible night vision and sensitivity to blue light. I used…Continue reading Balance & Perception – Long Cane Training.
My presentation on Occupational Therapy from the HMSA EDS UK Management & Wellbeing Conference 2017. JBOT
I often discuss the ‘disabled people are inspirational’ issue with friends and family. ‘Inspiration P0rn’. I am often told I’m inspirational, some times I smile and say thank you while rolling my eyes, sometimes I challenge the person in question and at other times I take it as a compliment. I could lecture about this…Continue reading Misplaced Inspiration – Being Healthy is HARD
Throughout my Occupational Therapy training and my short but already meaningful career I’ve heard two key phrases in relation to OT. ‘Holistic’ and ‘Client centred’ .. even as students who struggled to explain exactly what being an OT involved we all knew that we had to practice holistically and be client centred . So, we…Continue reading The Problem with Pain Scales
Today the muggy heat has really finished me off. I’m tachycardic, woozy and my stomach is angrier than normal thanks to my autonomic issues. I’d quite like to curl up in a ball in front of an open fridge and stay there for the whole day. I do struggle with heat intolerance but what really…Continue reading Day 22 of #30DaysWild – PoTS (not the plant kind) & Squabbling Starlings.
In my work as an OT and in my life in general I often come across phrases that make me sad. I have lost count of the times I’ve heard ‘I don’t have time to pace’. This phrase is usually followed by a list of things the person does for others… I often have to…Continue reading Self-Care isn’t Self-Indulgent
In this online age, access to medical information is faster and simpler than ever before. The ease with which patients can search for symptoms, diagnoses and treatments has plays a big role in the the e-patient 1 movement. About 5% of all internet searches are about medical information 2 . Support groups, patient advocacy groups…Continue reading Dr Google & The e-Patient Experince
Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes