Growth through a chronic patients experiences

Understanding a chronic patient’s experience…

Healthcare professionals have a duty of care to each patient, client, individual we see. We are taught to listen, understand, and problem-solve, all in the best interest of the individual. We all want to see our patient ‘get better’, ‘progress’, ‘recover’. Sometimes we get lost in these words and don’t take the time to support…Continue reading Understanding a chronic patient’s experience…

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coronavirus shielding: advice for rejoining the world

Coronavirus Shielding: Advice for rejoining the world

2020 has definitely been a roller-coaster.. mostly made up of scary downhill parts and sudden drops. For many folks with pre-existing conditions (myself included) the last few months have been downright scary. The lack of information around what actually constituted a risk meant that many people were in a weird no man’s land where they…Continue reading Coronavirus Shielding: Advice for rejoining the world

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Misplaced Inspiration – Being Healthy is HARD

I often discuss the ‘disabled people are inspirational’ issue with friends and family. ‘Inspiration P0rn’. I am often told I’m inspirational, some times I smile and say thank you while rolling my eyes, sometimes I challenge the person in question and at other times I take it as a compliment. I could lecture about this…Continue reading Misplaced Inspiration – Being Healthy is HARD

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Day 22 of #30DaysWild – PoTS (not the plant kind) & Squabbling Starlings.

Today the muggy heat has really finished me off. I’m tachycardic, woozy and my stomach is angrier than normal thanks to my autonomic issues. I’d quite like to curl up in a ball in front of an open fridge and stay there for the whole day. I do struggle with heat intolerance but what really…Continue reading Day 22 of #30DaysWild – PoTS (not the plant kind) & Squabbling Starlings.

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