In this online age, access to medical information is faster and simpler than ever before. The ease with which patients can search for symptoms, diagnoses and treatments has plays a big role in the the e-patient 1 movement. About 5% of all internet searches are about medical information 2 . Support groups, patient advocacy groups…Continue reading Dr Google & The e-Patient Experince
Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes
Something a little different for this blog post. I recently had the pleasure of working with Shona of My Marfan Life. Here, she share’s her experiences working with me and a bit about her life with Marfan Syndrome. “Recently I had the pleasure of having a 30 minute consultation with Jo to create a flare up…Continue reading Flare Up Planning with Shona
Bolderwood Deer Sanctuary is situated near the heart of The New Forest National Park. The Deer Sanctuary provides a convenient and fairly accessible way to get close to a variety of deer, semi-wild ponies and other wildlife. A large car park and shed-like set of toilets are all that stand out on arrival. The car park…Continue reading Bolderwood Deer Sanctuary, The New Forest
This ‘Wheelchair Propelling Techniques’ section might (at first) seem pretty self-explanatory. You sit down and push with your hands right? Well actually there’s a bit more to it. Little adjustments with your body can make a big difference. Lets start with simply moving a chair over smooth ground. Make sure you’re siting comfortably, don’t slouch…Continue reading Wheelchair Propelling Techniques
In this modern age of late night TV and smart phones by the bed, getting a good nights sleep has become somewhat of a struggle. Throw in any kind of health problem and restful sleep becomes almost impossible. ‘Painsomnia’ (insomnia caused by pain) can cause particular problems. This post will explain the basic principles of…Continue reading Sleep Hygiene – Tips for getting a good nights sleep
Using splinting is one common strategy for managing the symptoms of Hypermobility Syndromes such as Ehlers Danlos. People with a hypermobility syndromes (HMS) often have very poor proprioception, this basically means we don’t really know where our own arms and legs are so we tend to have a lot of accidents compared to ‘normal’ people.…Continue reading Using Splinting with Hypermobility Syndromes
Accessibility is a word that I hear all the time. Accessibility refers to the design of products, services or environments for people with impairments. It’s often though of as a fixed standard, either something is accessible or it isn’t. When you start looking deeper though you realise that isn’t really true. How can something be yes/no…Continue reading Accessibility. There’s more to it than you think.
Continuing the ‘beginners guide to wheelchair life‘ this post will answer the first question from a JBOT fan… Wheelchair Accessories to answer your wheelchair woes. “How to carry anything whilst self-propelling!” – Ellie May Petty. This is something that most new wheelies struggle with.. balancing things on your lap (and dropping them) hanging things off…Continue reading Wheelchair Accessories
“The Able Label provides quality, stylish clothes with adapted designs and hidden extras that make self-dressing easier for those with dressing difficulties.” The Able Label is a stylish and comfy adaptive clothing range, I’m proud to announce my affiliation with them. Their items feature a number of accessibility features. To start with, no…Continue reading The Able Label – Adaptive Clothing
