13th day in rehab

Fairly relaxed day today, I had a bit of a layin then got myself up and dressed. Physio man came to see me and I was introduced to the 3rd physio on the team. She seemed a little more hesitant about the EDS risks during physio than the other two but I gave her my…Continue reading 13th day in rehab

Ring Splints By Zomile

Ring Splints by Zomile make affordable, high quality silver and gold finger splints for conditions like Ehlers Danlos Syndrome, Marfan Syndrome, Rheumatoid Arthritis, Swan Neck Deformity and more. The splints block hyperextension of the finger joints (dip & pip joints) while still allowing normal hand function. I am utterly in love with them, not only do they look…Continue reading Ring Splints By Zomile

EDS Awareness Month Continued!

I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!

May is Ehlers Danlos Syndrome Awareness Month!

I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!

May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome

EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome