The Problem with Pain Scales

Throughout my Occupational Therapy training and my short but already meaningful career I’ve heard two key phrases in relation to OT. ‘Holistic’ and ‘Client centred’ .. even as students who struggled to explain exactly what being an OT involved we all knew that we had to practice holistically and be client centred [1]. So, we…Continue reading The Problem with Pain Scales

Using Splinting with Hypermobility Syndromes

Using splinting is one common strategy for managing the symptoms of Hypermobility Syndromes such as Ehlers Danlos. People with a hypermobility syndromes (HMS) often have very poor proprioception, this basically means we don’t really know where our own arms and legs are so we tend to have a lot of accidents compared to ‘normal’ people.…Continue reading Using Splinting with Hypermobility Syndromes

Accessibility. There’s more to it than you think.

Accessibility is a word that I hear all the time. Accessibility refers to the design of products, services or environments for people with impairments. It’s often though of as a fixed standard, either something is accessible or it isn’t.  When you start looking deeper though you realise that isn’t really true. How can something be yes/no…Continue reading Accessibility. There’s more to it than you think.

Beginners guide to Kinesiology Tape

By popular demand, here’s a quick introduction to using kinesiology tape. I am not officially trained in any way so if you’re unsure about taping please consult your physio or similar. This guide aims to provide a few hints and tips that will get you started with taping and help you decided if its right…Continue reading Beginners guide to Kinesiology Tape

Chronic Pain – What does it actually feel like?

This is something I’ve been meaning to write about for a long time. While doing my dissertation before christmas I repeatedly read that most newly qualified healthcare professionals do not have a modern understanding of pain. I reviewed 9 articles for my dissertation, one common theme was the negative patient experience. Patients not feeling validated,…Continue reading Chronic Pain – What does it actually feel like?

My Top Adaptive Life Apps

Ok so just a quick post. These are little reviews of my most frequently used or most useful apps. Some of these apps are aimed at anyone and everyone but others are more for people with illnesses or disabilities. If you see something totally irrelevant then please just keep scrolling on to the next one.…Continue reading My Top Adaptive Life Apps

MedNexus.io – Review

Hello folks. This is a sponsored review* of a nifty new site called MedNexus. This is a medical search engine designed for patients. I am all for this since I firmly believe we should all be our own health advocates, I actively encourage people to be well-informed about their own health conditions but not all…Continue reading MedNexus.io – Review

Hypermobility Syndromes – When to seek medical help?

Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point.  That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?

Therapeutic Relationships

Therapeutic Relationships – Getting the most from Healthcare

I’m often asked how I’ve managed to get the most out of healthcare appointments, there is no quick answer so I’ve decided to write a longer one. As always, this post is written from the dual perspective of expert patient and healthcare professional. Much of this post is written from my own personal experience. During…Continue reading Therapeutic Relationships – Getting the most from Healthcare

Exercise

Exercise with a Chronic Illness or Variable Disability.

I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.