I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.
I’m going to start this post with something from last night. I got chatting with the lovely lady in the bed next to me last night, we got on well so we added each other on facebook. After a little bit of snooping she realised that we actually have 5 friends in common! Not (as…Continue reading The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.
As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
Today was one of Addz days off, there aren’t many days in th week we both have free but Saturday’s is one of them. Addz gets up early and heads off somewhere for a run while I supervise the pillows for a few more hours…beds can’t be left alone for too long ya know! We…Continue reading Days out and wheelchair pimping
Hello folks I know it’s been a few days since I’ve blogged but for the most part I’ve been asleep! After getting Home from hospital in Tuesday and my epic walk back to the house u spent the rest of the day in bed. Wednesday started with a layin, I just couldn’t get going. I…Continue reading Home at last: settling in, physio, hair dye and mobility aids.
Jam on toast and lots of good luck and goodbye messages already 🙂 I’m certainly going to miss this lot! After getting myself up and dressed I made myself some earrings to go with my cotton cord necklace and bracelet set. After finishing that I started chasing down staff with my business cards in hand.…Continue reading 24th and last day in rehab.
Up bright and early this morning (with both shoulders and a hip out of joint! It’s really hard to pop a hip back in when you can’t feel anything besides pins and needles in either arm!) After yesterday’s emotional meltdown I was up ready for a fight this morning but my morning was a little…Continue reading 23rd day in rehab and my last full day! (wheelchair drama, walking for miles and surprise visits from friends)
Beautifully sunny day today but a brisk sea breeze. Up and dressed pretty early and I was laid on a yoga mat ready to watch the marathon. If they can run 26 miles I can do all of my physio! So after an hour or so of intermittent Physiotherapy I got myself back on the…Continue reading 22nd day in rehab (old deer, beads and yet more wheelchair woes and self-indulgent emotional ramblings)
Survived the night flat much better having taken diazepam before bed so I’ll be trialling that again tonight. I’ve still go lots of orders to complete for the hospital staff so I got dressed and started beading early. I made myself a bracelet to go with my cotton cord necklace from yesterday I’d just finished…Continue reading 20th day in rehab (beads, discharge planning and walking lots)
Bad pain day today .. In preparation for my discharge I’m trying to wean myself off the profiling bed so last night I tried to sleep laid flat down with just pillows for support. Well it’s not good I’m in a lot of pain, my hips and back particularly are really sore. That deep down…Continue reading 19th day in rehab (pain pain go away, pretty things are here to stay)