This is something I’ve been meaning to write about for a long time. While doing my dissertation before christmas I repeatedly read that most newly qualified healthcare professionals do not have a modern understanding of pain. I reviewed 9 articles for my dissertation, one common theme was the negative patient experience. Patients not feeling validated,…Continue reading Chronic Pain – What does it actually feel like?
Tag: Health & Disability. EDS & PoTS
My Top Adaptive Life Apps
Ok so just a quick post. These are little reviews of my most frequently used or most useful apps. Some of these apps are aimed at anyone and everyone but others are more for people with illnesses or disabilities. If you see something totally irrelevant then please just keep scrolling on to the next one.…Continue reading My Top Adaptive Life Apps
#NHSselfie #SaveOurNHS #NotSafeNotFair
Today I’m sharing a selfie to support all the NHS staff against healthcare reforms. The first photo is me in resus at Worcester Royal Hospital. I was admitted with tachycardia, dehydration and mystery neurological symptoms including muscle spasms that left me with most of my joints dislocated. It took me 6 weeks across 3 different…Continue reading #NHSselfie #SaveOurNHS #NotSafeNotFair
World Mental Health Day – ‘Health’ & Individuality
“Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity” (World Health Organization) We all have ‘Mental Health’, it is literally impossible to be ‘healthy’ without looking after your mental health as well as your physical health. Health of all kinds is on a spectrum,…Continue reading World Mental Health Day – ‘Health’ & Individuality
Life with an Un-cooperative Body
A quick post on what its like living with an un-cooperative body and the challenges of invisible disabilities. Set during one day at university.
Exercise with a Chronic Illness or Variable Disability.
I’ve thought about an exercise post for a while. I’ve had a couple of half-formed ideas about how to write this post but a recent article shared by the BBC has spurred me on. The article, Difficulties of Getting fit if you’re disabled by Kate Ansell, was brilliantly written and covered a lot of the topics I think…Continue reading Exercise with a Chronic Illness or Variable Disability.
Relationships, chronic illness & intimacy.
This one is a requested post and the first time I’ve co-written a post! Since this post is about maintaining healthy relationships I’ve invited my partner to share his side of the story too. I will apologise now for elevated levels of sarcasm and any unnecessary use of puns featured in this blog post. Just…Continue reading Relationships, chronic illness & intimacy.
Diagnosis pro’s and con’s
I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s
Home at last: settling in, physio, hair dye and mobility aids.
Hello folks I know it’s been a few days since I’ve blogged but for the most part I’ve been asleep! After getting Home from hospital in Tuesday and my epic walk back to the house u spent the rest of the day in bed. Wednesday started with a layin, I just couldn’t get going. I…Continue reading Home at last: settling in, physio, hair dye and mobility aids.
24th and last day in rehab.
Jam on toast and lots of good luck and goodbye messages already 🙂 I’m certainly going to miss this lot! After getting myself up and dressed I made myself some earrings to go with my cotton cord necklace and bracelet set. After finishing that I started chasing down staff with my business cards in hand.…Continue reading 24th and last day in rehab.