My presentation on Occupational Therapy from the HMSA EDS UK Management & Wellbeing Conference 2017. JBOT
It’s that time of year again, May is EDS Awareness Month. For the whole of May I’ll be raising awareness of Ehlers Danlos Syndromes. For those of you who don’t know what it is please head on over to my EDS info page. For the last few years I’ve offered to share info on any…Continue reading EDS Awareness Month – Open questions, ask me anything! #EDSAwarenessMonth
This is something I’ve been meaning to write about for a long time. While doing my dissertation before christmas I repeatedly read that most newly qualified healthcare professionals do not have a modern understanding of pain. I reviewed 9 articles for my dissertation, one common theme was the negative patient experience. Patients not feeling validated,…Continue reading Chronic Pain – What does it actually feel like?
Ok so just a quick post. These are little reviews of my most frequently used or most useful apps. Some of these apps are aimed at anyone and everyone but others are more for people with illnesses or disabilities. If you see something totally irrelevant then please just keep scrolling on to the next one.…Continue reading My Top Adaptive Life Apps
Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point. That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?
I’m often asked how I’ve managed to get the most out of healthcare appointments, there is no quick answer so I’ve decided to write a longer one. As always, this post is written from the dual perspective of expert patient and healthcare professional. Much of this post is written from my own personal experience. During…Continue reading Therapeutic Relationships – Getting the most from Healthcare
As usual this post is written from a dual perspective, I’m an Occupational Therapist and I have spent many years learning to manage my own health. With this post I aim to give a few simple ways of looking after your joints during everyday activities, hopefully explained in a simple way. As with all of…Continue reading Introduction to Joint Protection
As many of my regular readers will know I am currently training as an Occupational Therapist, as part of our final year my class mates and I are undertaking specialist workshops. We were recommended to pick something of interest, something we don’t know a lot about and something that we don’t have too strong an…Continue reading Reflections on ‘Life and Limb’ – Aceptance & Emotional Rollercoasters
There are many different types of splints for different uses. When deciding what will suit you there are lots of points to consider. So here goes, my run down on different methods of supporting your joints. Neoprene or Elastic Supports These are often fairly basic lightly shaped stretchy sleeves you simply pull on, commonly available for…Continue reading Types of Splinting and Bracing for Hypermobility Syndromes.
I’m going to start this post with something from last night. I got chatting with the lovely lady in the bed next to me last night, we got on well so we added each other on facebook. After a little bit of snooping she realised that we actually have 5 friends in common! Not (as…Continue reading The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.