Nice early start again this morning, I woke up in pain. My bum muscles are so so so sore! It’s really highlighted how little I normally use my glutes for walking and standing etc. Just half an half and hour working on those muscles and they hurt more than ever before! Guess that means I’m…Continue reading The Rehab Saga: OT, Water Exercise and more Physio.
Tag: Postural Orthostatic Tachycardia Syndrome
The Rehab Saga: Lazy Bum & Wheelchair basketball
I woke up at 7 feeling rubbish this morning. My right leg was a mass of muscle knots with a dislocated ankle, subluxed fibula (at the knee) and a subluxed hip all being held out of joint by spasms! After some painkillers and massage I got everything back were it belonged then taped my ankle…Continue reading The Rehab Saga: Lazy Bum & Wheelchair basketball
Share this:
The Rehab Saga: Admission day.
This series of blog posts will follow my 3 weeks at Stanmore hospital (RNOH). I’m going through the Hypermobility Rehab Programme in an attempt to learn how to manage my physical health problems, to get a bit fitter and to take a good look at the way I cope with things emotionally/psychologically. There are two…Continue reading The Rehab Saga: Admission day.
Share this:
When is the right time to use mobility aids?
This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?
Share this:
Diagnosis pro’s and con’s
I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s
Share this:
Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
Share this:
6th day in rehab
Nice early start this morning with a surprise cooked breakfast! Bacon, mushroom and toast 😀 thank you kitchen lady! Got myself dressed and presentable. Hospital transport arrived just after 9 to take me to orthotics. I arrived early and met Mum for a coffee/cake and a chat about the latest stupid Nigel Farrage related news…Continue reading 6th day in rehab
Share this:
Phase Change Cooling Vest Review
So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review
