Chronic Pain – What does it actually feel like?

This is something I’ve been meaning to write about for a long time. While doing my dissertation before christmas I repeatedly read that most newly qualified healthcare professionals do not have a modern understanding of pain. I reviewed 9 articles for my dissertation, one common theme was the negative patient experience. Patients not feeling validated,…Continue reading Chronic Pain – What does it actually feel like?

MedNexus.io – Review

Hello folks. This is a sponsored review* of a nifty new site called MedNexus. This is a medical search engine designed for patients. I am all for this since I firmly believe we should all be our own health advocates, I actively encourage people to be well-informed about their own health conditions but not all…Continue reading MedNexus.io – Review

Surviving a General Anaesthetic with H-EDS & PoTS

So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS

Temperature Regulation

Temperature Regulation Hints and Tips

Temperature Regulation¬†is supposed to happen naturally. Unfortunately many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and experience a…Continue reading Temperature Regulation Hints and Tips

Rehab Update: Goal Tracker, Gymnastics, Capsaicin and University

Hello again and Happy New Year!! Sorry for the lack of posting lately! This will be the first of my post-rehab updates having completed the 3 week pain management course at RNOH Stanmore. If you haven’t read about my adventured there then please check the posts starting with ‘The Rehab Saga’.

The Rehab Saga: Happily Ever After

This was my last day at RNOH Stanmore (last half day anyway) I was up and dressed nice and early, we all shared a breakfast and were even joined by an ex patient who was back for her 3 month review, she talked to me about her progress and I’m feeling really optimistic. Its so…Continue reading The Rehab Saga: Happily Ever After

The Rehab Saga: 2nd Weekend Home

So saturday was a total write off, the allergic reaction drove me MAD. So so Itchy… I felt pretty toxic and lethargic all day and I don’t think its the double dose of antihistamines… I was starting to see some improvement with the ear infection tho so thats good. I spent most of the day…Continue reading The Rehab Saga: 2nd Weekend Home

The Rehab Saga: End of week 2

So after I finished thursday nights blog post I noticed something peculiar. I’d come out in a rash. It would seem I’m allergic to my anti-fungal medication. By bed time the rash covered my arms, legs and tummy. I got one of the nurses to bleep the Dr, she said to just stop taking the…Continue reading The Rehab Saga: End of week 2

The Rehab Saga: Weekend Goals, Nutrition and extra Physio.

So after I finished my blog post yesterday I was planning on having an early night. That didn’t happen. I layed down for a while and read my kindle (no hope of sleeping with the lights on and everyone talking) I’ve been struggling to sleep here anyway so I was easily irritated by lights or…Continue reading The Rehab Saga: Weekend Goals, Nutrition and extra Physio.