Chronic Pain – What does it actually feel like?

This is something I’ve been meaning to write about for a long time. While doing my dissertation before christmas I repeatedly read that most newly qualified healthcare professionals do not have a modern understanding of pain. I reviewed 9 articles for my dissertation, one common theme was the negative patient experience. Patients not feeling validated,…Continue reading Chronic Pain – What does it actually feel like?

Surviving a General Anaesthetic with H-EDS & PoTS

So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS

Temperature Regulation

Temperature Regulation Hints and Tips

Temperature Regulation¬†is supposed to happen naturally. Unfortunately many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and experience a…Continue reading Temperature Regulation Hints and Tips

Rehab Update: Goal Tracker, Gymnastics, Capsaicin and University

Hello again and Happy New Year!! Sorry for the lack of posting lately! This will be the first of my post-rehab updates having completed the 3 week pain management course at RNOH Stanmore. If you haven’t read about my adventured there then please check the posts starting with ‘The Rehab Saga’.

The Rehab Saga: Happily Ever After

This was my last day at RNOH Stanmore (last half day anyway) I was up and dressed nice and early, we all shared a breakfast and were even joined by an ex patient who was back for her 3 month review, she talked to me about her progress and I’m feeling really optimistic. Its so…Continue reading The Rehab Saga: Happily Ever After

The Rehab Saga: 2nd Weekend Home

So saturday was a total write off, the allergic reaction drove me MAD. So so Itchy… I felt pretty toxic and lethargic all day and I don’t think its the double dose of antihistamines… I was starting to see some improvement with the ear infection tho so thats good. I spent most of the day…Continue reading The Rehab Saga: 2nd Weekend Home

The Rehab Saga: End of week 2

So after I finished thursday nights blog post I noticed something peculiar. I’d come out in a rash. It would seem I’m allergic to my anti-fungal medication. By bed time the rash covered my arms, legs and tummy. I got one of the nurses to bleep the Dr, she said to just stop taking the…Continue reading The Rehab Saga: End of week 2

The Rehab Saga: Weekend Goals, Nutrition and extra Physio.

So after I finished my blog post yesterday I was planning on having an early night. That didn’t happen. I layed down for a while and read my kindle (no hope of sleeping with the lights on and everyone talking) I’ve been struggling to sleep here anyway so I was easily irritated by lights or…Continue reading The Rehab Saga: Weekend Goals, Nutrition and extra Physio.

The Rehab Saga: The Beginning of Week 2

First day back after the weekend and up bright and early this morning. Everyone loves a 5:30am start right? … Our first session of the day was a review of our weekends. We took it in turn to discuss the progress we’d made with our goals and what we got up to at the weekend.…Continue reading The Rehab Saga: The Beginning of Week 2