It’s not often I write about how much disability can suck. I do my very best to stay positive. I write useful posts with coping strategies. I think I do a pretty good job when it comes to living a fun and meaningful life but there are some times when I genuinely feel like my…Continue reading Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability
Please check out this new facebook group, its been set up by a friend of mine to help re-home adapted textbooks. VI Adapted Textbooks “This group is specifically for visually impaired young people/parents to give and receive VI adapted school textbooks (Braille, Large Print, etc). I have a reasonable number of large print textbooks thanks…Continue reading Adapted Textbook Exchange – Blind / Visually Impaired – Braille / Large Print
I’ve been wearing tinted glasses since I was 12 years old. I started out with dark green but very quickly moved to orange. I’ve had a fair few pairs of orange tints. I’m used to them, I think I look a little odd without tinted glasses now! I just see them as part of myself…Continue reading Tinted Lenses – Visual Stress, Migraines and more
This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?
Hey folks its been a while since I updated you all so here goes… I had a visit from my lovely community OT who ordered me a profiling bed, its arrived and it is sleep heaven! I love it, Im now able to lift up either my head or feet or both, raise and lower…Continue reading OT, Physio, Sunbathing and Jewellery making 🙂
Today was one of Addz days off, there aren’t many days in th week we both have free but Saturday’s is one of them. Addz gets up early and heads off somewhere for a run while I supervise the pillows for a few more hours…beds can’t be left alone for too long ya know! We…Continue reading Days out and wheelchair pimping
So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review