Temperature Regulation is supposed to happen naturally. Unfortunately many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and experience a…Continue reading Temperature Regulation Hints and Tips
There are many different types of splints for different uses. When deciding what will suit you there are lots of points to consider. So here goes, my run down on different methods of supporting your joints. Neoprene or Elastic Supports These are often fairly basic lightly shaped stretchy sleeves you simply pull on, commonly available for…Continue reading Types of Splinting and Bracing for Hypermobility Syndromes.
Please remember throughout this post, I am not a yoga instructor, I am not a physiotherapist. This is all info I’ve learned through personal experiences with yoga and Ehlers Danlos. I recommend checking with your Dr or physio if you’re unsure about anything.
Hello again and Happy New Year!! Sorry for the lack of posting lately! This will be the first of my post-rehab updates having completed the 3 week pain management course at RNOH Stanmore. If you haven’t read about my adventured there then please check the posts starting with ‘The Rehab Saga’.
So I’m getting really close to complete my rehab stay and today was mostly about rounding up the programme and making sure I’m as prepared as possible before going out into the wide world to continue my life. I overslept this morning (I’m blaming the antihistamines) but I did get up early enough to go…Continue reading The Rehab Saga: Goal Setting, Red Hot Chilli Pepper (Capsaicin) and Swimming
After struggling to wake up yesterday I was expecting to really struggle this morning, I was pleasantly surprised when I woke up at 7:15 and didn’t feel half bad! I hopped in the shower (and even washed my hair) before grabbing breakfast there were a couple of new faces on the ward this morning so…Continue reading The Rehab Saga: Physio, friends, family and beer pong.
This is the start of my last week its also the last of my 5:30am starts! The drive up took an hour longer than normal this morning so I was feeling pretty rubbish by the time we finally arrive, (kinda desperate for the loo too!) My first order of business after un-pacing was to request…Continue reading The Rehab Saga: weekend recap and balance training
So saturday was a total write off, the allergic reaction drove me MAD. So so Itchy… I felt pretty toxic and lethargic all day and I don’t think its the double dose of antihistamines… I was starting to see some improvement with the ear infection tho so thats good. I spent most of the day…Continue reading The Rehab Saga: 2nd Weekend Home
So after I finished thursday nights blog post I noticed something peculiar. I’d come out in a rash. It would seem I’m allergic to my anti-fungal medication. By bed time the rash covered my arms, legs and tummy. I got one of the nurses to bleep the Dr, she said to just stop taking the…Continue reading The Rehab Saga: End of week 2
So after I finished my blog post yesterday I was planning on having an early night. That didn’t happen. I layed down for a while and read my kindle (no hope of sleeping with the lights on and everyone talking) I’ve been struggling to sleep here anyway so I was easily irritated by lights or…Continue reading The Rehab Saga: Weekend Goals, Nutrition and extra Physio.