Temperature Regulation

Temperature Regulation Hints and Tips

Temperature Regulation is supposed to happen naturally. Unfortunately many people with complex health conditions find that this simply doesn’t work. As many of you may know I have Postural Orthostatic Tachycardia Syndrome (PoTS). Basically, because of my Ehlers Danlos my autonomic system is a bit wonky. I struggle to adjust to postural changes and experience a…Continue reading Temperature Regulation Hints and Tips

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Types of Splinting and Bracing for Hypermobility Syndromes.

There are many different types of splints for different uses. When deciding what will suit you there are lots of  points to consider. So here goes, my run down on different methods of supporting your joints. Neoprene or  Elastic Supports These are often fairly basic lightly shaped stretchy sleeves you simply pull on, commonly available for…Continue reading Types of Splinting and Bracing for Hypermobility Syndromes.

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The Rehab Saga: Goal Setting, Red Hot Chilli Pepper (Capsaicin) and Swimming

So I’m getting really close to complete my rehab stay and today was mostly about rounding up the programme and making sure I’m as prepared as possible before going out into the wide world to continue my life. I overslept this morning (I’m blaming the antihistamines) but I did get up early enough to go…Continue reading The Rehab Saga: Goal Setting, Red Hot Chilli Pepper (Capsaicin) and Swimming

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The Rehab Saga: Physio, friends, family and beer pong.

After struggling to wake up yesterday I was expecting to really struggle this morning, I was pleasantly surprised when I woke up at 7:15 and didn’t feel half bad! I hopped in the shower (and even washed my hair) before grabbing breakfast there were a couple of new faces on the ward this morning so…Continue reading The Rehab Saga: Physio, friends, family and beer pong.

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The Rehab Saga: weekend recap and balance training

This is the start of my last week its also the last of my 5:30am starts! The drive up took an hour longer than normal this morning so I was feeling pretty rubbish by the time we finally arrive, (kinda desperate for the loo too!) My first order of business after un-pacing was to request…Continue reading The Rehab Saga: weekend recap and balance training

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The Rehab Saga: Weekend Goals, Nutrition and extra Physio.

So after I finished my blog post yesterday I was planning on having an early night. That didn’t happen. I layed down for a while and read my kindle (no hope of sleeping with the lights on and everyone talking) I’ve been struggling to sleep here anyway so I was easily irritated by lights or…Continue reading The Rehab Saga: Weekend Goals, Nutrition and extra Physio.

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