DisabilOT – OTs with disabilities

I’ve made a big effort to engage with the online OT community and I have to say I’m loving it. Tweet chats like #OTalk and the up and coming #WeAHPs are making it much easier to connect with likeminded people across the world. Social media is making the world a more accessible place and I…Continue reading DisabilOT – OTs with disabilities

When is the right time to use mobility aids?

This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?

Diagnosis pro’s and con’s

I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s

Trixie Jogging Belt for Hands Free Dog Walking

I purchased this via amazon ”Trixie Waist Belt” so that I could walk dogs from my wheelchair or on crutches without getting hopelessly tangled. I have tried various methods like tying leads to my chair, carabiners, leads looped over my arms but all of them had the same flaw. The leads were either too long…Continue reading Trixie Jogging Belt for Hands Free Dog Walking

Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

Phase Change Cooling Vest Review

So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review

Ring Splints By Zomile

Ring Splints by Zomile make affordable, high quality silver and gold finger splints for conditions like Ehlers Danlos Syndrome, Marfan Syndrome, Rheumatoid Arthritis, Swan Neck Deformity and more. The splints block hyperextension of the finger joints (dip & pip joints) while still allowing normal hand function. I am utterly in love with them, not only do they look…Continue reading Ring Splints By Zomile

EDS Awareness Month Continued!

I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!