My Top Adaptive Life Apps

Ok so just a quick post. These are little reviews of my most frequently used or most useful apps. Some of these apps are aimed at anyone and everyone but others are more for people with illnesses or disabilities. If you see something totally irrelevant then please just keep scrolling on to the next one.…Continue reading My Top Adaptive Life Apps

MedNexus.io – Review

Hello folks. This is a sponsored review* of a nifty new site called MedNexus. This is a medical search engine designed for patients. I am all for this since I firmly believe we should all be our own health advocates, I actively encourage people to be well-informed about their own health conditions but not all…Continue reading MedNexus.io – Review

Hypermobility Syndromes – When to seek medical help?

Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point. ┬áThat’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?

Non-verbal communication

So this is a new topic for me but I think it’s probably going to help a lot of people. Communication is something we all do, usually without much thought but there are some times when communication can be a bit harder. The most obvious types of communication are talking and listening but actually, a…Continue reading Non-verbal communication

Therapeutic Relationships

Therapeutic Relationships – Getting the most from Healthcare

I’m often asked how I’ve managed to get the most out of healthcare appointments, there is no quick answer so I’ve decided to write a longer one. As always, this post is written from the dual perspective of expert patient and healthcare professional. Much of this post is written from my own personal experience. During…Continue reading Therapeutic Relationships – Getting the most from Healthcare

Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability

It’s not often I write about how much disability can suck. I do my very best to stay positive. I write useful posts with coping strategies. I think I do a pretty good job when it comes to living a fun and meaningful life but there are some times when I genuinely feel like my…Continue reading Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability

Joint Protection

Introduction to Joint Protection

As usual this post is written from a dual perspective, I’m an Occupational Therapist and I have spent many years learning to manage my own health. With this post I aim to give a few simple ways of looking after your joints during everyday activities, hopefully explained in a simple way. As with all of…Continue reading Introduction to Joint Protection

Pain Management

Pain Management, it’s not always about pills.

Pain management is a complex and lifelong challenge for many people. The most obvious answer to the pain problem is painkillers right? Pain meds often come with some nasty side effects and can be highly addictive. I’m not saying pain killers are all bad (they aren’t) and I’m not saying everyone who uses them will…Continue reading Pain Management, it’s not always about pills.

#NHSselfie #SaveOurNHS #NotSafeNotFair

Today I’m sharing a selfie to support all the NHS staff against healthcare reforms. The first photo is me in resus at Worcester Royal Hospital. I was admitted with tachycardia, dehydration and mystery neurological symptoms including muscle spasms that left me with most of my joints dislocated. It took me 6 weeks across 3 different…Continue reading #NHSselfie #SaveOurNHS #NotSafeNotFair

Surviving a General Anaesthetic with H-EDS & PoTS

So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS