Types of Splinting and Bracing for Hypermobility Syndromes.

There are many different types of splints for different uses. When deciding what will suit you there are lots of  points to consider. So here goes, my run down on different methods of supporting your joints. Neoprene or  Elastic Supports These are often fairly basic lightly shaped stretchy sleeves you simply pull on, commonly available for…Continue reading Types of Splinting and Bracing for Hypermobility Syndromes.

Yoga with Hypermobility Syndromes – Safe Stretching

Please remember throughout this post, I am not a yoga instructor, I am not a physiotherapist. This is all info I’ve learned through personal experiences with yoga and Ehlers Danlos. I recommend checking with your Dr or physio if you’re unsure about anything.

DisabilOT – OTs with disabilities

I’ve made a big effort to engage with the online OT community and I have to say I’m loving it. Tweet chats like #OTalk and the up and coming #WeAHPs are making it much easier to connect with likeminded people across the world. Social media is making the world a more accessible place and I…Continue reading DisabilOT – OTs with disabilities

Pacing

Pacing – when is the Boom worth the Bust?

Symptom management is a really important part of living well with a chronic health condition. For symptoms like fatigue and pain, Pacing is an essential skill to learn. There is no easy fix for long-term health conditions but there are a lot of little fixes that can help. To make the most of these little…Continue reading Pacing – when is the Boom worth the Bust?

The Rehab Saga: Jam Packed & Working hard!

It was all fun and games on the ward last night, we had a power cut just before 10pm…the emergency lighting came on in the ward but not in the bathrooms so I got ready for bed in the dark using my phone as a torch! The emergency lighting was stuck on until the power…Continue reading The Rehab Saga: Jam Packed & Working hard!

When is the right time to use mobility aids?

This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?

Diagnosis pro’s and con’s

I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s

Trixie Jogging Belt for Hands Free Dog Walking

I purchased this via amazon ”Trixie Waist Belt” so that I could walk dogs from my wheelchair or on crutches without getting hopelessly tangled. I have tried various methods like tying leads to my chair, carabiners, leads looped over my arms but all of them had the same flaw. The leads were either too long…Continue reading Trixie Jogging Belt for Hands Free Dog Walking

Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

Phase Change Cooling Vest Review

So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review