Having a chronic illness like a hypermobility disorder commonly comes with different co-morbidities. Dysautonomia problems like PoTS, chronic fatigue and pain, gastrointestinal problems, and visual stress just to name a few. A few co-morbidities that are commonly seen in people with hypermobility is neurodivergent conditions like Autism (ASD) and ADHD. In this blog post I…Continue reading Link Between Neurodiversity and Hypermobility
Tag: POTS
15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
Today marks week 5 of my 1st ever hospital admission, and since the 1st half of the day was spent doing sod all I thought I’d reflect on a few things. I started this journey thinking I’d be in over night… Just till the diazepam wore off… I was wrong. The last 5 week’s have…Continue reading 15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
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14th day in rehab (race horses, the great escape and beading)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
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13th day in rehab
Fairly relaxed day today, I had a bit of a layin then got myself up and dressed. Physio man came to see me and I was introduced to the 3rd physio on the team. She seemed a little more hesitant about the EDS risks during physio than the other two but I gave her my…Continue reading 13th day in rehab
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Phase Change Cooling Vest Review
So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review
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EDS Awareness Month Continued!
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!
