Having a chronic illness like a hypermobility disorder commonly comes with different co-morbidities. Dysautonomia problems like PoTS, chronic fatigue and pain, gastrointestinal problems, and visual stress just to name a few. A few co-morbidities that are commonly seen in people with hypermobility is neurodivergent conditions like Autism (ASD) and ADHD. In this blog post I…Continue reading Link Between Neurodiversity and Hypermobility
Tag: POTS
Home at last: settling in, physio, hair dye and mobility aids.
Hello folks I know it’s been a few days since I’ve blogged but for the most part I’ve been asleep! After getting Home from hospital in Tuesday and my epic walk back to the house u spent the rest of the day in bed. Wednesday started with a layin, I just couldn’t get going. I…Continue reading Home at last: settling in, physio, hair dye and mobility aids.
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23rd day in rehab and my last full day! (wheelchair drama, walking for miles and surprise visits from friends)
Up bright and early this morning (with both shoulders and a hip out of joint! It’s really hard to pop a hip back in when you can’t feel anything besides pins and needles in either arm!) After yesterday’s emotional meltdown I was up ready for a fight this morning but my morning was a little…Continue reading 23rd day in rehab and my last full day! (wheelchair drama, walking for miles and surprise visits from friends)
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22nd day in rehab (old deer, beads and yet more wheelchair woes and self-indulgent emotional ramblings)
Beautifully sunny day today but a brisk sea breeze. Up and dressed pretty early and I was laid on a yoga mat ready to watch the marathon. If they can run 26 miles I can do all of my physio! So after an hour or so of intermittent Physiotherapy I got myself back on the…Continue reading 22nd day in rehab (old deer, beads and yet more wheelchair woes and self-indulgent emotional ramblings)
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21st day in rehab (sneaky visit home to watch Grey's Anatomy, the GF Easter bunny)
I had a layin of a whole half an hour this morning before scrambled egg on toast and getting up and dressed. My back is definitely a lot better when I take diazepam at night so I think I might stick with that for a while. I spent most of the morning reading in bed…Continue reading 21st day in rehab (sneaky visit home to watch Grey's Anatomy, the GF Easter bunny)
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20th day in rehab (beads, discharge planning and walking lots)
Survived the night flat much better having taken diazepam before bed so I’ll be trialling that again tonight. I’ve still go lots of orders to complete for the hospital staff so I got dressed and started beading early. I made myself a bracelet to go with my cotton cord necklace from yesterday I’d just finished…Continue reading 20th day in rehab (beads, discharge planning and walking lots)
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19th day in rehab (pain pain go away, pretty things are here to stay)
Bad pain day today .. In preparation for my discharge I’m trying to wean myself off the profiling bed so last night I tried to sleep laid flat down with just pillows for support. Well it’s not good I’m in a lot of pain, my hips and back particularly are really sore. That deep down…Continue reading 19th day in rehab (pain pain go away, pretty things are here to stay)
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17th day in rehab (Walking & shopping)
Upland about in my beautiful new chair again today, ditched the e-motion power assist wheels and went for the standard manual wheels the chair came with. I pushed 2 laps of the hospital with Mary J (my wheelchair) and I headed back to my room to read and practice wheelies 😉 Physio man came to…Continue reading 17th day in rehab (Walking & shopping)
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15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
Today marks week 5 of my 1st ever hospital admission, and since the 1st half of the day was spent doing sod all I thought I’d reflect on a few things. I started this journey thinking I’d be in over night…Â Just till the diazepam wore off… I was wrong. The last 5 week’s have…Continue reading 15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
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14th day in rehab (race horses, the great escape and beading)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
