Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes
Tag: Syndrome
Using Splinting with Hypermobility Syndromes
Using splinting is one common strategy for managing the symptoms of Hypermobility Syndromes such as Ehlers Danlos. People with a hypermobility syndromes (HMS) often have very poor proprioception, this basically means we don’t really know where our own arms and legs are so we tend to have a lot of accidents compared to ‘normal’ people.…Continue reading Using Splinting with Hypermobility Syndromes
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Hypermobility Syndromes – When to seek medical help?
Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point. That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?
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The Rehab Saga: Last day of week 1 and temporary discharge!
Sorry this one is a few days late folks! Up bright and early Friday morning. We only had one session in the morning before going home for the weekend so it was a slightly more relaxed start than the rest of the week. After s breakfast of GF cornflakes I did some physio and made…Continue reading The Rehab Saga: Last day of week 1 and temporary discharge!
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Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
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RSPB Minsmere Accessibility Review
RSPB Minsmere is a coastal reserve in Saxmundham, Suffolk. The reserve covers over 2,000 acres and is a mix of woodland, wetland, meadows, reed beds and shorelines. The 1st thing I have to compliment them on is their access statement, their website is FANTASTIC (available here) it covers so much more than just ‘wheelchair accessible…Continue reading RSPB Minsmere Accessibility Review
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15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
Today marks week 5 of my 1st ever hospital admission, and since the 1st half of the day was spent doing sod all I thought I’d reflect on a few things. I started this journey thinking I’d be in over night… Just till the diazepam wore off… I was wrong. The last 5 week’s have…Continue reading 15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
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14th day in rehab (race horses, the great escape and beading)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
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May is Ehlers Danlos Syndrome Awareness Month!
I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!
