Physiotherapy expectations with hypermobility syndromes

Physiotherapy Expectations With Hypermobility Syndromes

Physiotherapy is the treatment of disease, injury, or deformity by physical methods such as exercise, movement, manual therapies and education1. It can be used along side medication and traditional pain management strategies and is often used following surgery too. I often (and quite correctly) see people recommending physiotherapy to treat Hypermobility Syndromes like Ehlers Danlos and Marfan…Continue reading Physiotherapy Expectations With Hypermobility Syndromes

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Using Splinting with Hypermobility Syndromes

Using splinting is one common strategy for managing the symptoms of Hypermobility Syndromes such as Ehlers Danlos. People with a hypermobility syndromes (HMS) often have very poor proprioception, this basically means we don’t really know where our own arms and legs are so we tend to have a lot of accidents compared to ‘normal’ people.…Continue reading Using Splinting with Hypermobility Syndromes

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Hypermobility Syndromes – When to seek medical help?

Living with Ehlers Danlos or any of the other hypermobility syndromes does mean you are going to get injuries at some point.  That’s not me being negative, it’s the truth. Living with these disorders is risky! Simply rolling over in bed or putting on socks can lead to ridiculous injuries. I do my best to…Continue reading Hypermobility Syndromes – When to seek medical help?

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The Rehab Saga: Last day of week 1 and temporary discharge!

Sorry this one is a few days late folks! Up bright and early Friday morning. We only had one session in the morning before going home for the weekend so it was a slightly more relaxed start than the rest of the week. After s breakfast of GF cornflakes I did some physio and made…Continue reading The Rehab Saga: Last day of week 1 and temporary discharge!

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Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

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RSPB Minsmere Accessibility Review

RSPB Minsmere is a coastal reserve in Saxmundham, Suffolk. The reserve covers over 2,000 acres and is a mix of woodland, wetland, meadows, reed beds and shorelines. The 1st thing I have to compliment them on is their access statement, their website is FANTASTIC (available here) it covers so much more than just ‘wheelchair accessible…Continue reading RSPB Minsmere Accessibility Review

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Home at last: settling in, physio, hair dye and mobility aids.

Hello folks I know it’s been a few days since I’ve blogged but for the most part I’ve been asleep! After getting Home from hospital in Tuesday and my epic walk back to the house u spent the rest of the day in bed. Wednesday started with a layin, I just couldn’t get going. I…Continue reading Home at last: settling in, physio, hair dye and mobility aids.

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23rd day in rehab and my last full day! (wheelchair drama, walking for miles and surprise visits from friends)

Up bright and early this morning (with both shoulders and a hip out of joint! It’s really hard to pop a hip back in when you can’t feel anything besides pins and needles in either arm!) After yesterday’s emotional meltdown I was up ready for a fight this morning but my morning was a little…Continue reading 23rd day in rehab and my last full day! (wheelchair drama, walking for miles and surprise visits from friends)

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