This series of blog posts will follow my 3 weeks at Stanmore hospital (RNOH). I’m going through the Hypermobility Rehab Programme in an attempt to learn how to manage my physical health problems, to get a bit fitter and to take a good look at the way I cope with things emotionally/psychologically. There are two…Continue reading The Rehab Saga: Admission day.
Tag: ehlers danlos syndrome
When is the right time to use mobility aids?
This is a topic I’ve discussed a lot over the years since my health started to decline due to Ehlers Danlos. There is a lot of stigma associated with mobility aids, I’m often questioned why I use a wheelchair when I can walk or why I use crutches when I have a wheelchair. The reasons…Continue reading When is the right time to use mobility aids?
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Diagnosis pro’s and con’s
I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s
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Rhizomed Thumb Support from Medi
Ok so I received this awesome new thumb splint this morning and I’ve decided to do a quick review (I couldn’t find any other reviews for this model online so I figured I should write one) Before we get started although I’m an OT student and I splint regularly in my daily life this doesn’t…Continue reading Rhizomed Thumb Support from Medi
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Rehab progress update, Beach Yoga
Today was too hot so we headed to the beach, after a quick visit to granny and a picnic I set about getting a photo of me doing something I’ve been working on for months. After a long hard journey I have finally achieved one of my final goals. I was discharged from Rehab in…Continue reading Rehab progress update, Beach Yoga
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Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
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Ring Splints By Zomile
Ring Splints by Zomile make affordable, high quality silver and gold finger splints for conditions like Ehlers Danlos Syndrome, Marfan Syndrome, Rheumatoid Arthritis, Swan Neck Deformity and more. The splints block hyperextension of the finger joints (dip & pip joints) while still allowing normal hand function. I am utterly in love with them, not only do they look…Continue reading Ring Splints By Zomile
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EDS Awareness Month Continued!
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!
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May is Ehlers Danlos Syndrome Awareness Month!
I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!
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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
