First day back after the weekend and up bright and early this morning. Everyone loves a 5:30am start right? … Our first session of the day was a review of our weekends. We took it in turn to discuss the progress we’d made with our goals and what we got up to at the weekend.…Continue reading The Rehab Saga: The Beginning of Week 2
Tag: Hypermobile
The Rehab Saga: Lazy Bum & Wheelchair basketball
I woke up at 7 feeling rubbish this morning. My right leg was a mass of muscle knots with a dislocated ankle, subluxed fibula (at the knee) and a subluxed hip all being held out of joint by spasms! After some painkillers and massage I got everything back were it belonged then taped my ankle…Continue reading The Rehab Saga: Lazy Bum & Wheelchair basketball
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The Rehab Saga: Admission day.
This series of blog posts will follow my 3 weeks at Stanmore hospital (RNOH). I’m going through the Hypermobility Rehab Programme in an attempt to learn how to manage my physical health problems, to get a bit fitter and to take a good look at the way I cope with things emotionally/psychologically. There are two…Continue reading The Rehab Saga: Admission day.
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Diagnosis pro’s and con’s
I’ve heard a lot of chat about how people feel when they receive a diagnosis, so I’ve decided to share my ramblings on the topic. There tend to be 3 distinct trains of thought upon receiving a diagnosis. 1. I’ve got a diagnosis this is good. 2. I’ve got a diagnosis this is bad. 3.…Continue reading Diagnosis pro’s and con’s
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Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)
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14th day in rehab (race horses, the great escape and beading)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
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13th day in rehab
Fairly relaxed day today, I had a bit of a layin then got myself up and dressed. Physio man came to see me and I was introduced to the 3rd physio on the team. She seemed a little more hesitant about the EDS risks during physio than the other two but I gave her my…Continue reading 13th day in rehab
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EDS Awareness Month Continued!
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!
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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
