Survived the night flat much better having taken diazepam before bed so I’ll be trialling that again tonight. I’ve still go lots of orders to complete for the hospital staff so I got dressed and started beading early. I made myself a bracelet to go with my cotton cord necklace from yesterday I’d just finished…Continue reading 20th day in rehab (beads, discharge planning and walking lots)
Tag: Hypermobile
19th day in rehab (pain pain go away, pretty things are here to stay)
Bad pain day today .. In preparation for my discharge I’m trying to wean myself off the profiling bed so last night I tried to sleep laid flat down with just pillows for support. Well it’s not good I’m in a lot of pain, my hips and back particularly are really sore. That deep down…Continue reading 19th day in rehab (pain pain go away, pretty things are here to stay)
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17th day in rehab (Walking & shopping)
Upland about in my beautiful new chair again today, ditched the e-motion power assist wheels and went for the standard manual wheels the chair came with. I pushed 2 laps of the hospital with Mary J (my wheelchair) and I headed back to my room to read and practice wheelies 😉 Physio man came to…Continue reading 17th day in rehab (Walking & shopping)
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14th day in rehab (race horses, the great escape and beading)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
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13th day in rehab
Fairly relaxed day today, I had a bit of a layin then got myself up and dressed. Physio man came to see me and I was introduced to the 3rd physio on the team. She seemed a little more hesitant about the EDS risks during physio than the other two but I gave her my…Continue reading 13th day in rehab
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1st day of rehab
Day 1 in rehab. Woken up nice and early to a day with nothing planned. Spent a few hours making bracelets in the conservatory with the doors and Windows open. Then read lots, thank goodness for kindle. Got visited by Mum who bought me decent GF food and took me for a walk/wheel, my 1st…Continue reading 1st day of rehab
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EDS Awareness Month Continued!
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!
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May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
