Wheelchair Cushion Guide

Wheelchair shopping can be expensive and overwhelming. Often the chair itself take priority but sometimes the extras, like a decent wheelchair cushion, are just as important. Wheelchair Cushions make sitting for long periods more comfortable but they also play a part in temperature regulation, stability and preventing pressure injuries. There are literally thousands on the…Continue reading Wheelchair Cushion Guide

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Surviving a General Anaesthetic with H-EDS & PoTS

So as many of my friends will know I was in hospital yesterday to have a tooth extracted under general anaesthetic. It couldn’t have gone better really! I’ve spoken to a few people who have requested I jot down some of the ways the surgical team and I managed my ‘complex issues’ throughout the surgery…Continue reading Surviving a General Anaesthetic with H-EDS & PoTS

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An alternative approach to Physiotherapy

For many people around the world, regular physiotherapy is an accepted part of life. This doesn’t just go for chronic illnesses or long-term disabilities either. Plenty of people get short-term physio for acute injuries or a little physio input as they get older and less mobile. Simply needing physiotherapy doesn’t mean you’ll find it easy…Continue reading An alternative approach to Physiotherapy

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The Rehab Saga: Maintaining change, Physio/OT and a visit from Addz

Up bright and early this morning but I felt pretty sleepy (I’m blaming the added antihistamines) I did eventually drag myself out of bed and get dressed in time for the Stretch class. It was a pretty small group of us today so we chatted a bit but got the job done, the Therapy techs…Continue reading The Rehab Saga: Maintaining change, Physio/OT and a visit from Addz

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The Rehab Saga: weekend recap and balance training

This is the start of my last week its also the last of my 5:30am starts! The drive up took an hour longer than normal this morning so I was feeling pretty rubbish by the time we finally arrive, (kinda desperate for the loo too!) My first order of business after un-pacing was to request…Continue reading The Rehab Saga: weekend recap and balance training

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The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.

I’m going to start this post with something from last night. I got chatting with the lovely lady in the bed next to me last night, we got on well so we added each other on facebook. After a little bit of snooping she realised that we actually have 5 friends in common! Not (as…Continue reading The Rehab Saga: Bendie Knees, OT’s and Carrot Cake.

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The Rehab Saga: Last day of week 1 and temporary discharge!

Sorry this one is a few days late folks! Up bright and early Friday morning. We only had one session in the morning before going home for the weekend so it was a slightly more relaxed start than the rest of the week. After s breakfast of GF cornflakes I did some physio and made…Continue reading The Rehab Saga: Last day of week 1 and temporary discharge!

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Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

As part of the series on Splinting for Hypermobility Syndromes, this post will specifically cover corsets. Before we start I have to say I’m not a medical professional and I’m not a corset expert, this is all from my personal experience and before you take any advice from my blog I’d recommend reading around the…Continue reading Corset wearing for chronic back pain – Focus on Hypermobility (Ehlers Danlos Syndrome)

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