It’s not often I write about how much disability can suck. I do my very best to stay positive. I write useful posts with coping strategies. I think I do a pretty good job when it comes to living a fun and meaningful life but there are some times when I genuinely feel like my…Continue reading Sleep deprived ramblings -Why I use a wheelchair & Life with a variable disability
Pain management is a complex and lifelong challenge for many people. The most obvious answer to the pain problem is painkillers right? Pain meds often come with some nasty side effects and can be highly addictive. I’m not saying pain killers are all bad (they aren’t) and I’m not saying everyone who uses them will…Continue reading Pain Management, it’s not always about pills.
Symptom management is a really important part of living well with a chronic health condition. For symptoms like fatigue and pain, Pacing is an essential skill to learn 1 . There is no easy fix for life with long-term health conditions but there are a lot of little fixes that can help. To make the most…Continue reading Pacing – when is the Boom worth the Bust?
Beautifully sunny day today but a brisk sea breeze. Up and dressed pretty early and I was laid on a yoga mat ready to watch the marathon. If they can run 26 miles I can do all of my physio! So after an hour or so of intermittent Physiotherapy I got myself back on the…Continue reading 22nd day in rehab (old deer, beads and yet more wheelchair woes and self-indulgent emotional ramblings)
I had a layin of a whole half an hour this morning before scrambled egg on toast and getting up and dressed. My back is definitely a lot better when I take diazepam at night so I think I might stick with that for a while. I spent most of the morning reading in bed…Continue reading 21st day in rehab (sneaky visit home to watch Grey's Anatomy, the GF Easter bunny)
Survived the night flat much better having taken diazepam before bed so I’ll be trialling that again tonight. I’ve still go lots of orders to complete for the hospital staff so I got dressed and started beading early. I made myself a bracelet to go with my cotton cord necklace from yesterday I’d just finished…Continue reading 20th day in rehab (beads, discharge planning and walking lots)
Bad pain day today .. In preparation for my discharge I’m trying to wean myself off the profiling bed so last night I tried to sleep laid flat down with just pillows for support. Well it’s not good I’m in a lot of pain, my hips and back particularly are really sore. That deep down…Continue reading 19th day in rehab (pain pain go away, pretty things are here to stay)
Today marks week 5 of my 1st ever hospital admission, and since the 1st half of the day was spent doing sod all I thought I’d reflect on a few things. I started this journey thinking I’d be in over night… Just till the diazepam wore off… I was wrong. The last 5 week’s have…Continue reading 15th day in rehab (dealing with the emotional rollercoaster of chronic illness + back pain & vintage bargain shopping)
Today marks 2 weeks here at Aldeburgh Community Hospital and tomorrow marks week 5 in my hospital admission. (1st ever admission and hopefully my last for a LONG time) I have filled my room with stuff from home, my orchid, my beads, my clothes and it almost feels like home. I started the day with…Continue reading 14th day in rehab (race horses, the great escape and beading)
Fairly relaxed day today, I had a bit of a layin then got myself up and dressed. Physio man came to see me and I was introduced to the 3rd physio on the team. She seemed a little more hesitant about the EDS risks during physio than the other two but I gave her my…Continue reading 13th day in rehab