Day 3. Beautiful weather once again, the sunshine floods in through my bedroom window all morning. Started the day with bed based physio then taped my knees and ankles up afterwards. After being productive for a while I decided I’d earnt a treat so I finally sat down for a proper manicure (1st time in…Continue reading 3rd day in Rehab
Author: JBOT
2nd day in rehab
Today was day 2 of rehab and my 1st time meeting my physio and OT for my stay. I was again up nice and early with toast and jam. The physiotherapist and Occupational therapist came to see me briefly before lunch, but by the time I was done catching them up with my previous function,…Continue reading 2nd day in rehab
1st day of rehab
Day 1 in rehab. Woken up nice and early to a day with nothing planned. Spent a few hours making bracelets in the conservatory with the doors and Windows open. Then read lots, thank goodness for kindle. Got visited by Mum who bought me decent GF food and took me for a walk/wheel, my 1st…Continue reading 1st day of rehab
A long story short
Hi folks sorry it’s been such a long time since I blogged about anything. I had a few thing I meant to blog about but after recent events they seem totally unimportant. I’ve been on a health and disability rollercoaster and I’m going to do my best to catch you all up before I start…Continue reading A long story short
Phase Change Cooling Vest Review
So I was very excited to get my cooling vests in the post this morning. I was lucky enough to snatch the last 2 of the ‘Junior Cooling Vests’ from DisabledGear. I have been really struggling with heat intolerance, progressively since Christmas when I started developing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) Basically being…Continue reading Phase Change Cooling Vest Review
Ring Splints By Zomile
Ring Splints by Zomile make affordable, high quality silver and gold finger splints for conditions like Ehlers Danlos Syndrome, Marfan Syndrome, Rheumatoid Arthritis, Swan Neck Deformity and more. The splints block hyperextension of the finger joints (dip & pip joints) while still allowing normal hand function. I am utterly in love with them, not only do they look…Continue reading Ring Splints By Zomile
EDS Awareness Month Continued!
I Posted this photo as part of EDS Awareness Month to highlight just some of the effects that Hypermobile-EDS has had on me and many others.. well the response was phenomenal! By the time I went to bed yesterday an amazing 41,312 people had seen that photo! There is no way this would have happened without…Continue reading EDS Awareness Month Continued!
May is Ehlers Danlos Syndrome Awareness Month!
I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some of the problems faced bt people with Hypermobile Ehlers Danlos Syndrome (H-EDS) Well The lovely Ladies and Gents at the HMSA (hypermobility sundrome association) posted it again on their facebook page and twitter etc.. Fac I am…Continue reading May is Ehlers Danlos Syndrome Awareness Month!
May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome
EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing…Continue reading May is EDS Awareness month! I have Hypermobile Ehlers Danlos Syndrome